Department of Nursing, Henan Provincial Key Medicine Laboratory of Nursing, Henan Provincial People's Hospital, Zhengzhou University People's Hospital, No. 7 Weiwu Road, Zhengzhou, China.
School of Nursing, Zhengzhou University, Zhengzhou, China.
BMC Public Health. 2024 Mar 15;24(1):817. doi: 10.1186/s12889-024-18321-3.
The caregiver burden frequently experienced by family members tending to advanced cancer patients significantly impacts their psychological well-being and quality of life (QoL). Although family resilience might function as a mitigating factor in this relationship, its specific role remains to be elucidated. This study aims to probe the mediating effect of psychological distress on the relationship between caregiver burden and QoL, as well as the moderating effect of family resilience.
A cross-sectional study was conducted between June 2020 and March 2021 in five tertiary hospitals in China. Data were collected on caregiver burden, family resilience, psychological distress (including anxiety and depression), and QoL. Moderated mediation analysis was performed.
Data analysis included 290 caregivers. It confirmed the mediating role of psychological distress in the caregiver burden-QoL relationship (P < 0.001). Both overall family resilience and the specific dimension of family communication and problem-solving (FCPS) demonstrated significant moderating effects on the "psychological distress/anxiety-QoL" paths (P < 0.05). The utilization of social and economic resources (USER) significantly moderated the association between depression and QoL (P < 0.05).
The study corroborates psychological distress's mediation between caregiver burden and QoL and family resilience's moderation between psychological distress and QoL. It underscores the need for minimizing psychological distress and bolstering family resilience among caregivers of advanced cancer patients. Accordingly, interventions should be tailored, inclusive of psychological assistance and promotion of family resilience, particularly focusing on FCPS and USER, to augment the caregivers' well-being and QoL.
照顾晚期癌症患者的家庭成员经常会经历照顾者负担，这对他们的心理健康和生活质量（QoL）有显著影响。虽然家庭韧性可能是缓解这种关系的一个因素，但它的具体作用仍需阐明。本研究旨在探讨心理困扰在照顾者负担与 QoL 之间的关系中的中介作用，以及家庭韧性的调节作用。
这是一项在中国五所三级医院进行的横断面研究，时间为 2020 年 6 月至 2021 年 3 月。收集了照顾者负担、家庭韧性、心理困扰（包括焦虑和抑郁）和 QoL 的数据。进行了调节中介分析。
数据分析包括 290 名照顾者。结果证实了心理困扰在照顾者负担与 QoL 关系中的中介作用（P<0.001）。家庭韧性的整体水平和家庭沟通与解决问题的具体维度（FCPS）都对“心理困扰/焦虑与 QoL”的路径有显著的调节作用（P<0.05）。社会和经济资源的利用（USER）显著调节了抑郁与 QoL 之间的关系（P<0.05）。
本研究证实了心理困扰在照顾者负担与 QoL 之间的中介作用，以及家庭韧性在心理困扰与 QoL 之间的调节作用。这强调了需要减少晚期癌症患者照顾者的心理困扰，增强家庭韧性。因此，应针对照顾者提供干预措施，包括心理援助和促进家庭韧性，特别是关注 FCPS 和 USER，以提高照顾者的幸福感和 QoL。
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