Karadag Ayse Serap, Kandi Basak, Sanlı Berna, Ulusal Hande, Basusta Hasan, Sener Seray, Calıka Sinem
Department of Dermatology, Medical School of Istanbul Arel University, Istanbul, Turkey.
Private Clinic, Ankara, Turkey.
JMIR Dermatol. 2024 Mar 28;7:e51267. doi: 10.2196/51267.
Social media has established its place in our daily lives, especially with the advent of the COVID-19 pandemic. It has become the leading source of information for dermatological literacy on various topics, ranging from skin diseases to everyday skincare and cosmetic purposes in the present digital era. Accumulated evidence indicates that accurate medical content constitutes only a tiny fraction of the exponentially growing dermatological information on digital platforms, highlighting an unmet patient need for access to evidence-based information on social media. However, there have been no recent local publications from Turkey analyzing and assessing the key elements in raising dermatological literacy and awareness in digital communication for patients. To the best of our knowledge, this study is the first collaborative work between health care professionals and a social media specialist in the medical literature. Furthermore, it represents the first author-initiated implementation science attempt focusing on the use of social media in addressing dermatological problems, with the primary end point of increasing health literacy and patient benefits. The multidisciplinary expert panel was formed by 4 dermatologists with academic credentials and significant influence in public health and among patients on digital platforms. A social media specialist, who serves as a guest lecturer on "How social media works" at Istanbul Technical University, Turkey, was invited to the panel as an expert on digital communication. The panel members had a kickoff meeting to establish the context for the discussion points. The context of the advisory board meeting was outlined under 5 headlines. Two weeks later, the panel members presented their social media account statistics, defined the main characteristics of dermatology patients on social media, and discussed their experiences with patients on digital platforms. These discussions were organized under the predefined headlines and in line with the current literature. We aimed to collect expert opinions on identifying the main characteristics of individuals interested in dermatological topics and to provide recommendations to help dermatologists increase evidence-based dermatological content on social media. Additionally, experts discussed paradigms for dermatological outreach and the role of dermatologists in reducing misleading information on digital platforms in Turkey. The main concluding remark of this study is that dermatologists should enhance their social media presence to increase evidence-based knowledge by applying the principles of patient-physician communication on digital platforms while maintaining a professional stance. To achieve this goal, dermatologists should share targeted scientific content after increasing their knowledge about the operational rules of digital channels. This includes correctly identifying the needs of those seeking information on social media and preparing a sustainable social media communication plan. This viewpoint reflects Turkish dermatologists' experiences with individuals searching for dermatological information on local digital platforms; therefore, the applicability of recommendations may be limited and should be carefully considered.
社交媒体在我们的日常生活中已占据一席之地,尤其是在新冠疫情出现之后。在当今数字时代,它已成为各类皮肤科知识信息的主要来源,内容涵盖从皮肤疾病到日常护肤及美容用途等诸多方面。越来越多的证据表明,在数字平台上呈指数级增长的皮肤科信息中,准确的医学内容仅占极小一部分,这凸显了患者在社交媒体上获取循证信息的需求尚未得到满足。然而,土耳其近期尚无本地出版物对通过数字通信提高皮肤科知识水平和意识的关键要素进行分析和评估。据我们所知,本研究是医学文献中医疗保健专业人员与社交媒体专家的首次合作成果。此外,它代表了第一作者发起的实施科学尝试,重点关注利用社交媒体解决皮肤科问题,主要目标是提高健康素养并让患者受益。多学科专家小组由4位在公共卫生领域以及数字平台上对患者有重大影响力的皮肤科医生组成。一位在土耳其伊斯坦布尔技术大学担任“社交媒体如何运作”客座讲师的社交媒体专家作为数字通信专家受邀加入该小组。小组成员召开了一次启动会议,为讨论要点奠定基础。咨询委员会会议的背景在5个标题下进行了概述。两周后,小组成员展示了他们社交媒体账户的统计数据,确定了社交媒体上皮肤科患者的主要特征,并讨论了他们在数字平台上与患者交流的经验。这些讨论是根据预先确定的标题并结合当前文献进行组织的。我们旨在收集关于确定对皮肤科话题感兴趣的个人主要特征的专家意见,并提供建议以帮助皮肤科医生在社交媒体上增加循证性皮肤科内容。此外,专家们还讨论了皮肤科宣传的模式以及皮肤科医生在减少土耳其数字平台上误导性信息方面的作用。本研究的主要结论是,皮肤科医生应通过在数字平台上应用医患沟通原则并保持专业立场,增强其在社交媒体上的影响力,以增加循证知识。为实现这一目标,皮肤科医生应在增加对数字渠道运营规则的了解后,分享有针对性的科学内容。这包括正确识别在社交媒体上寻求信息者的需求,并制定可持续的社交媒体沟通计划。这一观点反映了土耳其皮肤科医生与在本地数字平台上搜索皮肤科信息的个人打交道的经验;因此,这些建议的适用性可能有限,应谨慎考虑。