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“无论如何,我们都会照顾好自己的孩子”:宾夕法尼亚州西南部抚养受抚养子女的黑人母亲参与艾滋病毒护理的经历:一项回顾性描述性定性研究

"We Take Care of Our Young, No Matter What," Experiences of Engagement in HIV Care Among Black Mothers Parenting Dependent Children in Southwestern Pennsylvania: A Retrospective Descriptive Qualitative Study.

作者信息

Mangum Laurenia C, Aidoo-Frimpong Gloria, Alexander Ivana, Waddell Ashley, Whitfield Darren L

机构信息

Laurenia Mangum, PhD, MPH, LMSW, is an Assistant Professor, Jane Addams College of Social Work, University of Illinois, Chicago, Illinois, USA. Gloria Aidoo-Frimpong, PhD, MPH, MA, is a Postdoctoral Fellow, Center for Interdisciplinary Research on AIDS, Yale AIDS Prevention Program, Yale School of Public Health, New Haven, Connecticut, USA. Ivana Alexander, MSW, MEd, LICSW, is a Doctoral Candidate, University of Maryland School of Social Work, Baltimore, Maryland, USA. Ashley Waddell, LCSW, is a Licensed Clinical Social Worker and Executive Director of Wholistic Alignment, LLC, Richmond, Virginia, USA. Darren L. Whitfield, PhD, MSW, is an Associate Professor, University of Maryland School of Social Work, Baltimore, Maryland, USA.

出版信息

J Assoc Nurses AIDS Care. 2024;35(3):252-263. doi: 10.1097/JNC.0000000000000473. Epub 2024 Apr 4.

Abstract

This retrospective descriptive study sought to explore the lived experiences of Black mothers with HIV navigating HIV medical care while parenting dependent children. Six themes were generated from the semi-structured interviews conducted with mothers ( N = 9) related to motherhood, interactions with health care systems and providers, coping, social support, HIV self-management, and HIV prevention. Findings suggested that supportive interpersonal relationships with HIV health care providers, HIV nondisclosure to family and friends, and social network support, inclusive of health care providers, were protective factors in achieving optimal treatment adherence and viral suppression. Findings may inform interventions for improving social support and reducing stigma in HIV care for Black mothers with HIV who are parenting dependent children.

摘要

这项回顾性描述性研究旨在探索感染艾滋病毒的黑人母亲在抚养受抚养子女的同时接受艾滋病毒医疗护理的生活经历。通过对9位母亲进行半结构化访谈,产生了六个主题,这些主题与母亲身份、与医疗保健系统及提供者的互动、应对方式、社会支持、艾滋病毒自我管理以及艾滋病毒预防有关。研究结果表明,与艾滋病毒医疗保健提供者建立支持性的人际关系、对家人和朋友隐瞒感染艾滋病毒的情况,以及包括医疗保健提供者在内的社会网络支持,是实现最佳治疗依从性和病毒抑制的保护因素。这些研究结果可能为干预措施提供参考,以改善社会支持并减少对抚养受抚养子女的感染艾滋病毒的黑人母亲在艾滋病毒护理方面的污名化。

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