Suppr超能文献

在新冠疫情时代为自闭症谱系障碍患者提供服务:农村家庭的特殊考量

Serving Individuals With Autism Spectrum Disorder in the Age of COVID-19: Special Considerations for Rural Families.

作者信息

Tomeny Theodore S, Hudac Caitlin M, Malaia Evie A, Morett Laura M, Tomeny Kimberly R, Watkins Laci, Kana Rajesh K

机构信息

The University of Alabama, Tuscaloosa, USA.

出版信息

Rural Spec Educ Q. 2023 Jun;42(2):105-118. doi: 10.1177/87568705231167440. Epub 2023 May 2.

Abstract

This position paper explores the needs of rural families of children, adolescents, and adults with autism spectrum disorder (ASD) during the COVID-19 pandemic. Prior to COVID-19, literature portrays elevated stress in families of individuals with ASD and health and socioeconomic disparities for rural and underserved populations. These disparities were exacerbated due to COVID-19 and subsequent lockdowns and economic turmoil. Academic and adaptive skills training were particularly impacted due to school closures, with parents tasked with taking some responsibility for training these skills. Our goals for this article focus on special considerations for rural families regarding (a) neurobiological and developmental impacts of stressful experiences like COVID-19, (b) delineation of the impacts on individuals with ASD and other comorbid and related conditions, and (c) education and intervention needs during these times. Finally, we offer suggestions for future care during pandemic events, including recommendations for improving service delivery under such conditions.

摘要

本立场文件探讨了在新冠疫情期间,农村地区患有自闭症谱系障碍(ASD)的儿童、青少年及成人家庭的需求。在新冠疫情之前,文献表明ASD患者家庭压力较大,农村及服务不足人群存在健康和社会经济差距。由于新冠疫情及随后的封锁措施和经济动荡,这些差距进一步加剧。学校关闭对学术和适应性技能培训产生了特别影响,家长需承担部分培训这些技能的责任。本文的目标重点关注农村家庭在以下方面的特殊考量:(a)新冠疫情等压力经历对神经生物学和发育的影响;(b)明确对患有ASD及其他共病和相关病症个体的影响;(c)这些时期的教育和干预需求。最后,我们针对疫情期间的未来护理提供建议,包括在此类情况下改善服务提供的建议。

相似文献

1
Serving Individuals With Autism Spectrum Disorder in the Age of COVID-19: Special Considerations for Rural Families.
Rural Spec Educ Q. 2023 Jun;42(2):105-118. doi: 10.1177/87568705231167440. Epub 2023 May 2.
5
Economic impacts of the COVID-19 pandemic on families of children with autism and other developmental disabilities.
Front Psychiatry. 2024 Feb 14;15:1342504. doi: 10.3389/fpsyt.2024.1342504. eCollection 2024.
7
Understanding stress in parents of children with autism spectrum disorder: A focus on under-represented families.
Int J Dev Disabil. 2019;65(1):20-30. doi: 10.1080/20473869.2017.1347228. Epub 2017 Jul 9.
9
COVID-19 Pandemic and Impact on Patients with Autism Spectrum Disorder.
J Autism Dev Disord. 2022 Jan;52(1):473-482. doi: 10.1007/s10803-021-04950-9. Epub 2021 Mar 10.
10
Parental Views of Families of Children with Autism Spectrum Disorder and Developmental Disorders During the COVID-19 Pandemic.
J Autism Dev Disord. 2022 Apr;52(4):1712-1724. doi: 10.1007/s10803-021-05070-0. Epub 2021 May 15.

本文引用的文献

1
It took a pandemic: Perspectives on impact, stress, and telehealth from caregivers of people with autism.
Res Dev Disabil. 2021 Jun;113:103938. doi: 10.1016/j.ridd.2021.103938. Epub 2021 Mar 14.
4
Stress and parenting during the global COVID-19 pandemic.
Child Abuse Negl. 2020 Dec;110(Pt 2):104699. doi: 10.1016/j.chiabu.2020.104699. Epub 2020 Aug 20.
5
A Model of Support for Families of Children With Autism Living in the COVID-19 Lockdown: Lessons From Italy.
Behav Anal Pract. 2020 Jun 2;13(3):550-558. doi: 10.1007/s40617-020-00438-7. eCollection 2020 Sep.
6
Fear and agony of the pandemic leading to stress and mental illness: An emerging crisis in the novel coronavirus (COVID-19) outbreak.
Psychiatry Res. 2020 Sep;291:113230. doi: 10.1016/j.psychres.2020.113230. Epub 2020 Jun 15.
7
COVID-19 and Autism Research: Perspectives from Around the Globe.
Autism Res. 2020 Jun;13(6):844-869. doi: 10.1002/aur.2329.
8
Telehealth in response to the COVID-19 pandemic: Implications for rural health disparities.
J Am Med Inform Assoc. 2020 Nov 1;27(11):1816-1818. doi: 10.1093/jamia/ocaa156.
10
Managing psychological distress in children and adolescents following the COVID-19 epidemic: A cooperative approach.
Psychol Trauma. 2020 Aug;12(S1):S76-S78. doi: 10.1037/tra0000754. Epub 2020 Jun 18.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验