Tomeny Theodore S, Hudac Caitlin M, Malaia Evie A, Morett Laura M, Tomeny Kimberly R, Watkins Laci, Kana Rajesh K
The University of Alabama, Tuscaloosa, USA.
Rural Spec Educ Q. 2023 Jun;42(2):105-118. doi: 10.1177/87568705231167440. Epub 2023 May 2.
This position paper explores the needs of rural families of children, adolescents, and adults with autism spectrum disorder (ASD) during the COVID-19 pandemic. Prior to COVID-19, literature portrays elevated stress in families of individuals with ASD and health and socioeconomic disparities for rural and underserved populations. These disparities were exacerbated due to COVID-19 and subsequent lockdowns and economic turmoil. Academic and adaptive skills training were particularly impacted due to school closures, with parents tasked with taking some responsibility for training these skills. Our goals for this article focus on special considerations for rural families regarding (a) neurobiological and developmental impacts of stressful experiences like COVID-19, (b) delineation of the impacts on individuals with ASD and other comorbid and related conditions, and (c) education and intervention needs during these times. Finally, we offer suggestions for future care during pandemic events, including recommendations for improving service delivery under such conditions.
本立场文件探讨了在新冠疫情期间,农村地区患有自闭症谱系障碍(ASD)的儿童、青少年及成人家庭的需求。在新冠疫情之前,文献表明ASD患者家庭压力较大,农村及服务不足人群存在健康和社会经济差距。由于新冠疫情及随后的封锁措施和经济动荡,这些差距进一步加剧。学校关闭对学术和适应性技能培训产生了特别影响,家长需承担部分培训这些技能的责任。本文的目标重点关注农村家庭在以下方面的特殊考量:(a)新冠疫情等压力经历对神经生物学和发育的影响;(b)明确对患有ASD及其他共病和相关病症个体的影响;(c)这些时期的教育和干预需求。最后,我们针对疫情期间的未来护理提供建议,包括在此类情况下改善服务提供的建议。