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“完美风暴”:绝经期和中年的自闭症经历。

"A perfect storm": Autistic experiences of menopause and midlife.

机构信息

Carleton University, Canada.

Independent Autistic Researcher, Canada.

出版信息

Autism. 2024 Jun;28(6):1405-1418. doi: 10.1177/13623613241244548. Epub 2024 Apr 15.

Abstract

Previous studies report that menopause can be a very difficult transition for some autistic people. This study focuses on how autistic people experience menopause and what support and information might help them. Autistic Community Research Associates played an important role in the research and co-authored this article. We held four focus groups and eight interviews online with 24 autistic participants who lived in either Canada ( = 13) or the United Kingdom ( = 11). We analysed participant conversations using a method called reflexive thematic analysis. Participants described many intense challenges during menopause. Four themes and eight subthemes were identified across participant groups: (1) Complexity, multiplicity and intensity of symptoms (0 subthemes); (2) Life experience and adversity converging at midlife (three subthemes); (3) The importance of knowledge and connection (two subthemes); and (4) Barriers to support and care (three subthemes). The experiences of our participants may not be the same as other autistic people, and the study could have been more inclusive of diverse autistic groups. However, hearing about the experiences of others may provide reassurance to autistic people who struggle with menopause and let them know they are not alone.

摘要

先前的研究报告指出,更年期对于一些自闭症患者来说是一个非常艰难的过渡时期。本研究重点关注自闭症患者如何经历更年期,以及哪些支持和信息可能对他们有所帮助。自闭症社区研究协会在这项研究中发挥了重要作用,并共同撰写了这篇文章。我们通过线上方式举行了四次焦点小组和八次访谈,共有 24 名居住在加拿大( = 13)或英国( = 11)的自闭症患者参与。我们使用一种称为反思性主题分析的方法对参与者的对话进行了分析。参与者描述了更年期期间的许多强烈挑战。四个主题和八个子主题在参与者群体中被确定:(1)症状的复杂性、多样性和强度(0 个子主题);(2)生活经历和逆境在中年汇聚(三个子主题);(3)知识和联系的重要性(两个子主题);以及(4)支持和护理的障碍(三个子主题)。我们参与者的经历可能与其他自闭症患者不同,本研究也可以更包容不同的自闭症群体。然而,了解他人的经历可能会为那些在更年期感到挣扎的自闭症患者提供安慰,并让他们知道他们并不孤单。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/40ef/11135000/edb2450188fd/10.1177_13623613241244548-fig1.jpg

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