青少年及家长对青少年在身材矮小评估决策角色的认知
Youth and Parent Perceptions of Youth Decision-Making Roles Regarding Evaluation for Short Stature.
作者信息
Fremont Ettya R, Friedrich Elizabeth A, Grimberg Adda, Miller Victoria A
机构信息
Division of Adolescent Medicine, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania.
Division of Endocrinology and Diabetes, Children's Hospital of Philadelphia.
出版信息
Child Health Care. 2024;53(2):148-162. doi: 10.1080/02739615.2022.2163491. Epub 2023 Jan 10.
Youth decision-making involvement (DMI) in medical treatment associates with greater adherence and feelings of self-efficacy. However, little is known about youth DMI regarding medical evaluation and diagnostic procedures. Using thematic analysis of semi-structured interviews, we explored parent (n=24) and youth (n=24) perceptions of youth roles in the decision to undergo evaluation for short stature. Five themes emerged about evaluation decisions including: parents/providers were gatekeepers, some parents sought youth agreement, conversations focused on logistics, some parents gave limited information, and youth expressed anxiety. Results suggest that including youth in discussions about evaluation may alleviate anxiety and uncertainty about upcoming procedures.
青少年在医疗决策中的参与（DMI）与更高的依从性和自我效能感相关。然而，关于青少年在医学评估和诊断程序方面的决策参与情况，我们了解甚少。通过对半结构化访谈进行主题分析，我们探讨了父母（n = 24）和青少年（n = 24）对青少年在决定接受身材矮小评估中的角色的看法。出现了五个关于评估决策的主题，包括：父母/提供者是把关人，一些父母寻求青少年的同意，谈话集中在后勤方面，一些父母提供的信息有限，以及青少年表达了焦虑。结果表明，让青少年参与关于评估的讨论可能会减轻对即将进行的程序的焦虑和不确定性。
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