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越南先天性无阴道综合征患者对代孕生育子女的认知:一项定性研究

Perception of having children through surrogacy in individuals with MRKH in Vietnam: a qualitative study.

作者信息

Le Thanh T Q, Le Nhung T H, Vu Tuan A, Nguyen Hoa H, Vuong Lan N

机构信息

Department of Obstetrics and Gynecology, University of Medicine and Pharmacy, Ho Chi Minh City, Vietnam.

Faculty of Medicine, Department of Obstetrics and Gynecology, Vietnam National University, Ho Chi Minh City, Vietnam.

出版信息

Front Psychol. 2024 May 6;15:1372405. doi: 10.3389/fpsyg.2024.1372405. eCollection 2024.

Abstract

INTRODUCTION

Mayer-Rokitansky-Küster-Hauser syndrome (MRKH) is rare condition that has a negative impact on quality of life because affected women lack a uterus and vagina, and are therefore unable to engage in sexual intercourse and experience natural pregnancy. This study evaluated perceptions of surrogacy in Vietnamese women with MRKH who have started families.

METHOD

Women with MRKH who had undergone successful vaginal reconstruction, were married, and had started families participated in a semi-structured, in-depth, one-on-one online video interview with an experienced female psychologist. Open-ended questions were used to encourage participants to express their perceptions of surrogacy; prominent themes were discussed, compared, and combined.

RESULTS

Twenty women (mean age 31 years) agreed to participate. Key themes identified from interviews were the importance of having genetic offspring, consideration of surrogacy as a preferred solution to infertility, the barriers to surrogacy in Vietnam, lack of reproductive information and counselling, individuals concealing their health condition, the impact of religion on the possibility of surrogacy, the economic cost of surrogacy, and the difficulty in finding a surrogate under the restrictions imposed by Vietnamese law.

DISCUSSION

Based on the perceptions of women from MRKH from Vietnam, there is an opportunity to improve how infertility is managed in these people, including information about surrogacy. These data show that individuals with MRKH should be provided with information about the possibility of surrogacy, encouraged to be open and seek support, and be managed by a multidisciplinary team that includes psychological support; the provision of economic support for fertility treatments in women with MRKH should also be considered.

摘要

引言

迈耶-罗基坦斯基-库斯特-豪泽综合征(MRKH)是一种罕见疾病,会对生活质量产生负面影响,因为患病女性没有子宫和阴道,因此无法进行性行为和自然受孕。本研究评估了已组建家庭的越南MRKH女性对代孕的看法。

方法

成功接受阴道重建、已婚且已组建家庭的MRKH女性参与了与一位经验丰富的女性心理学家进行的半结构化、深入、一对一在线视频访谈。采用开放式问题鼓励参与者表达她们对代孕的看法;对突出主题进行了讨论、比较和整合。

结果

20名女性(平均年龄31岁)同意参与。访谈确定的关键主题包括拥有遗传后代的重要性、将代孕视为不孕不育首选解决方案的考虑、越南代孕的障碍、生殖信息和咨询的缺乏、个人隐瞒健康状况、宗教对代孕可能性的影响、代孕的经济成本以及在越南法律限制下寻找代孕者的困难。

讨论

基于越南MRKH女性的看法,有机会改善对这些人群不孕不育问题的管理方式,包括提供有关代孕的信息。这些数据表明,应该向MRKH患者提供有关代孕可能性的信息,鼓励他们坦诚相待并寻求支持,由包括心理支持在内的多学科团队进行管理;还应考虑为MRKH女性的生育治疗提供经济支持。

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本文引用的文献

1
Raising Awareness About the Risk Factors of Female Infertility: Proactive Steps Towards Optimizing Fertility.
J Korean Med Sci. 2024 Mar 18;39(10):e113. doi: 10.3346/jkms.2024.39.e113.
2
A critical systematic review and meta-analyses of risk factors for fertility problems in a globalized world.
Reprod Biomed Online. 2024 Mar;48(3):103217. doi: 10.1016/j.rbmo.2023.04.008. Epub 2023 Apr 20.
3
The armed conflict in Ukraine and the risks of inter-country surrogacy: the unsolved dilemma.
Eur Rev Med Pharmacol Sci. 2022 Aug;26(16):5646-5650. doi: 10.26355/eurrev_202208_29497.
4
Female obesity and infertility: outcomes and regulatory guidance.
Acta Biomed. 2022 Aug 31;93(4):e2022278. doi: 10.23750/abm.v93i4.13466.
5
Bioethical issues and legal frameworks of surrogacy: A global perspective about the right to health and dignity.
Eur J Obstet Gynecol Reprod Biol. 2021 Mar;258:1-8. doi: 10.1016/j.ejogrb.2020.12.020. Epub 2020 Dec 15.
6
Regulating the international surrogacy market:the ethics of commercial surrogacy in the Netherlands and India.
Med Health Care Philos. 2020 Dec;23(4):621-630. doi: 10.1007/s11019-020-09976-x. Epub 2020 Sep 14.
7
Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome: a comprehensive update.
Orphanet J Rare Dis. 2020 Aug 20;15(1):214. doi: 10.1186/s13023-020-01491-9.
8
Legal and ethical issues in cross-border gestational surrogacy.
Fertil Steril. 2020 May;113(5):916-919. doi: 10.1016/j.fertnstert.2020.03.003. Epub 2020 Apr 20.
9
Feasibility study for performing uterus transplantation in the Netherlands.
Hum Reprod Open. 2020 Feb 28;2020(2):hoz032. doi: 10.1093/hropen/hoz032. eCollection 2020.
10
Understanding gestational surrogacy in the United States: a primer for obstetricians and gynecologists.
Am J Obstet Gynecol. 2020 Apr;222(4):330-337. doi: 10.1016/j.ajog.2020.01.037. Epub 2020 Jan 23.

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