van der Boon Robert M A, Camm A John, Aguiar C, Biasin E, Breithardt G, Bueno H, Drossart I, Hoppe N, Kamenjasevic E, Ladeiras-Lopes R, McGreavy Paul, Lanzer P, Vidal-Perez R, Bruining Nico
Erasmus Medical Center, Cardiovascular Institute, Department of Cardiology, Rotterdam, The Netherlands.
Genetic and Cardiovascular Sciences Institute, Cardiology Clinical Academic Group, St. Geroge's University of London, Cranmer Terrace, London, SW17 0RE, UK.
Eur Heart J Digit Health. 2024 Feb 12;5(3):199-207. doi: 10.1093/ehjdh/ztae009. eCollection 2024 May.
Social media (SoMe) has witnessed remarkable growth and emerged as a dominant method of communication worldwide. Platforms such as Facebook, X (formerly Twitter), LinkedIn, Instagram, TikTok, and YouTube have become important tools of the digital native generation. In the field of medicine, particularly, cardiology, attitudes towards SoMe have shifted, and professionals increasingly utilize it to share scientific findings, network with experts, and enhance teaching and learning. Notably, SoMe is being leveraged for teaching purposes, including the sharing of challenging and intriguing cases. However, sharing patient data, including photos or images, online carries significant implications and risks, potentially compromising individual privacy both online and offline. Privacy and data protection are fundamental rights within European Union treaties, and the General Data Protection Regulation (GDPR) serves as the cornerstone of data protection legislation. The GDPR outlines crucial requirements, such as obtaining 'consent' and implementing 'anonymization', that must be met before sharing sensitive and patient-identifiable information. Additionally, it is vital to consider the patient's perspective and prioritize ethical and social considerations when addressing challenges associated with sharing patient information on SoMe platforms. Given the absence of a peer-review process and clear guidelines, we present an initial approach, a code of conduct, and recommendations for the ethical use of SoMe. In conclusion, this comprehensive review underscores the importance of a balanced approach that ensures patient privacy and upholds ethical standards while harnessing the immense potential of SoMe to advance cardiology practice and facilitate knowledge dissemination.
社交媒体(SoMe)经历了显著增长,已成为全球主导的交流方式。脸书、X(前身为推特)、领英、照片墙、抖音和优兔等平台已成为数字原生代的重要工具。特别是在医学领域,心脏病学方面,人们对社交媒体的态度已经转变,专业人士越来越多地利用它来分享科学发现、与专家建立联系以及加强教学。值得注意的是,社交媒体正被用于教学目的,包括分享具有挑战性和趣味性的病例。然而,在网上分享患者数据,包括照片或图像,会带来重大影响和风险,可能会在网上和线下危及个人隐私。隐私和数据保护是欧盟条约中的基本权利,《通用数据保护条例》(GDPR)是数据保护立法的基石。GDPR概述了关键要求,如获得“同意”和实施“匿名化”,在分享敏感的、可识别患者身份的信息之前必须满足这些要求。此外,在应对与在社交媒体平台上分享患者信息相关的挑战时,考虑患者的观点并将伦理和社会因素置于优先地位至关重要。鉴于缺乏同行评审过程和明确的指导方针,我们提出了一种初步方法、一项行为准则以及关于社交媒体道德使用的建议。总之,这一全面综述强调了一种平衡方法的重要性,该方法在利用社交媒体推动心脏病学实践和促进知识传播的巨大潜力的同时,确保患者隐私并维护道德标准。