Department of Epidemiology, Columbia University Mailman School of Public Health, New York, NY, USA.
Department of Health, Behavior and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
J Natl Cancer Inst Monogr. 2024 Jun 5;2024(63):11-19. doi: 10.1093/jncimonographs/lgae002.
Vietnam is experiencing a growing burden of cancer, including among people living with HIV. Stigma acts as a sociocultural barrier to the prevention and treatment of both conditions. This study investigates how cultural notions of "respected personhood" (or "what matters most") influence manifestations of HIV-related stigma and cancer stigma in Hanoi, Vietnam.
Thirty in-depth interviews were conducted with people living with HIV in Hanoi, Vietnam. Transcripts were thematically coded via a directed content analysis using the What Matters Most conceptual framework. Coding was done individually and discussed in pairs, and any discrepancies were reconciled in full-team meetings.
Analyses elucidated that having chữ tín-a value reflecting social involvement, conscientiousness, and trustworthiness-and being successful (eg, in career, academics, or one's personal life) are characteristics of respected people in this local cultural context. Living with HIV and having cancer were seen as stigmatized and interfering with these values and capabilities. Intersectional stigma toward having both conditions was seen to interplay with these values in some ways that had distinctions compared with stigma toward either condition alone. Participants also articulated how cultural values like chữ tín are broadly protective against stigmatization and how getting treatment and maintaining employment can help individuals resist stigmatization's most acute impacts.
HIV-related and cancer stigma each interfere with important cultural values and capabilities in Vietnam. Understanding these cultural manifestations of these stigmas separately and intersectionally can allow for greater ability to measure and respond to these stigmas through culturally tailored intervention.
越南正面临着癌症负担不断增加的问题,包括艾滋病毒感染者。污名是预防和治疗这两种疾病的社会文化障碍。本研究调查了越南河内的“受尊敬的人格”(或“最重要的事情”)这一文化观念如何影响与艾滋病毒相关的污名和癌症污名的表现。
在越南河内,对 30 名艾滋病毒感染者进行了深入访谈。使用“最重要的事情”概念框架通过定向内容分析对转录本进行主题编码。编码由个人完成,并在两人小组中进行讨论,如果有任何差异,则在全体团队会议中进行协调。
分析结果表明,拥有诚信——一种反映社会参与、认真和值得信赖的价值观——以及取得成功(例如在职业、学业或个人生活中),是该地方文化背景中受人尊敬的人的特征。感染艾滋病毒和患有癌症被视为污名化的,并会干扰这些价值观和能力。同时患有这两种疾病的交叉污名与这些价值观相互作用,在某些方面与单一疾病的污名化有所区别。参与者还阐述了诚信等文化价值观如何广泛地防止污名化,以及接受治疗和保持就业如何帮助个人抵抗污名化的最严重影响。
艾滋病毒相关和癌症污名都干扰了越南重要的文化价值观和能力。分别和交叉理解这些污名的文化表现形式,可以使我们更有能力通过文化上量身定制的干预措施来衡量和应对这些污名。