Steno Diabetes Center Copenhagen, Department of Diabetes Care, Copenhagen University Hospital-Steno Diabetes Center Copenhagen, Borgmester Ib Juuls Vej 83, 2730 Herlev, Denmark.
Copenhagen Neuromuscular Center, Department of Neurology, Copenhagen University Hospital, Rigshospitalet, 2100 Copenhagen, Denmark.
Nutrients. 2024 May 25;16(11):1618. doi: 10.3390/nu16111618.
The care needs of children and adolescents with type 1 diabetes and their families are frequently approached as if they were identical to those of adults, overlooking the distinct challenges young people may face. It has been stated that children and adolescents often find conventional conversations with diabetes specialists tiresome and unpleasant. The present study focuses on familial experiences of an advanced carbohydrate counting program tailored to children and adolescents. The data encompass semi-structured interviews with families who participated in a group-based child-centered advanced carbohydrate counting program. The analysis revealed five themes: (1) peer-to-peer interaction is an essential determinant of sharing and learning; (2) illness perception significantly influences dietary intake; (3) normalization of diabetes in everyday life eases the disease burden; (4) repetition of dietary knowledge is important for retention; and (5) creating a safe and playful learning environment is crucial to engaging children and adolescents in their own treatment. The present findings suggest that it would be beneficial to explore and consider alternative teaching approaches that are adapted to a more interactive and engaging learning environment that is specifically tailored to children and adolescents. This entails moving away from traditional individual approaches.
儿童和青少年 1 型糖尿病患者及其家庭的护理需求通常被视为与成年人相同,而忽略了年轻人可能面临的独特挑战。有人指出,青少年通常觉得与糖尿病专家进行传统的对话既乏味又不愉快。本研究专注于针对儿童和青少年量身定制的先进碳水化合物计数方案的家庭体验。这些数据包括参与基于小组的以儿童为中心的先进碳水化合物计数方案的家庭的半结构化访谈。分析揭示了五个主题:(1)同伴互动是分享和学习的重要决定因素;(2)疾病观念对饮食摄入有重大影响;(3)日常生活中糖尿病的正常化减轻了疾病负担;(4)重复饮食知识对于保持记忆很重要;(5)创造安全且富有乐趣的学习环境对于吸引儿童和青少年参与自身治疗至关重要。本研究结果表明,探索和考虑替代教学方法将是有益的,这些方法应适应更具互动性和吸引力的学习环境,专门针对儿童和青少年进行调整。这需要摒弃传统的个体方法。