Dementia Research Centre, UCL Queen Square Institute of Neurology, University College London (UCL), London WC1N 3BG, UK.
School of Psychological Sciences, College of Engineering, Science and Environment, The University of Newcastle, Callaghan, NSW 2308, Australia.
Int J Environ Res Public Health. 2024 Jun 17;21(6):790. doi: 10.3390/ijerph21060790.
The WHO Dementia Global Action Plan states that rehabilitation services for dementia are required to promote health, reduce disability, and maintain quality of life for those living with dementia. Current services, however, are scarce, particularly for people with young-onset dementia (YOD). This article, written by an international group of multidisciplinary dementia specialists, offers a three-part overview to promote the development of rehabilitation services for YOD. Firstly, we provide a synthesis of knowledge on current evidence-based rehabilitative therapies for early-onset Alzheimer's disease (EOAD), behavioural variant frontotemporal dementia (bvFTD), primary progressive aphasia (PPA), and posterior cortical atrophy (PCA). Secondly, we discuss the characteristics of rehabilitation services for YOD, providing examples across three continents for how these services can be embedded in existing settings and the different roles of the rehabilitation multidisciplinary team. Lastly, we conclude by highlighting the potential of telehealth in making rehabilitation services more accessible for people with YOD. Overall, with this paper, we aim to encourage clinical leads to begin introducing at least some rehabilitation into their services, leveraging existing resources and finding support in the collective expertise of the broader multidisciplinary dementia professional community.
世界卫生组织(WHO)的《全球失智症行动计划》指出,需要为失智症提供康复服务,以促进患者的健康、减少残疾并维持其生活质量。然而,目前此类服务非常匮乏,尤其是针对早发性失智症(young-onset dementia,YOD)患者的服务。本文由一组国际多学科失智症专家撰写,旨在为开发针对 YOD 的康复服务提供三部分概述。首先,我们综合了早期发病的阿尔茨海默病(early-onset Alzheimer's disease,EOAD)、行为变异型额颞叶痴呆(behavioural variant frontotemporal dementia,bvFTD)、原发性进行性失语(primary progressive aphasia,PPA)和后部皮质萎缩(posterior cortical atrophy,PCA)等疾病基于循证的康复治疗知识。其次,我们讨论了 YOD 康复服务的特点,并举例说明了如何将这些服务嵌入现有的服务中,以及康复多学科团队的不同角色。最后,我们强调了远程医疗在为 YOD 患者提供更便捷的康复服务方面的潜力。总之,我们希望通过本文鼓励临床负责人在其服务中至少引入一些康复内容,利用现有资源,并在更广泛的多学科失智症专业社区的集体专业知识中寻求支持。