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设计澳大利亚癌症地图集:为多个受众可视化地质统计学模型不确定性。

Designing the Australian Cancer Atlas: visualizing geostatistical model uncertainty for multiple audiences.

机构信息

Human-Centred Computing, Faculty of Information Technology, Monash University, Clayton, VIC 3800, Australia.

ViseR, Queensland University of Technology (QUT), Brisbane, QLD 4000, Australia.

出版信息

J Am Med Inform Assoc. 2024 Nov 1;31(11):2447-2454. doi: 10.1093/jamia/ocae212.

Abstract

OBJECTIVE

The Australian Cancer Atlas (ACA) aims to provide small-area estimates of cancer incidence and survival in Australia to help identify and address geographical health disparities. We report on the 21-month user-centered design study to visualize the data, in particular, the visualization of the estimate uncertainty for multiple audiences.

MATERIALS AND METHODS

The preliminary phases included a scoping study, literature review, and target audience focus groups. Several methods were used to reach the wide target audience. The design and development stage included digital prototyping in parallel with Bayesian model development. Feedback was sought from multiple workshops, audience focus groups, and regular meetings throughout with an expert external advisory group.

RESULTS

The initial scoping identified 4 target audience groups: the general public, researchers, health practitioners, and policy makers. These target groups were consulted throughout the project to ensure the developed model and uncertainty visualizations were effective for communication. In this paper, we detail ACA features and design iterations, including the 3 complementary ways in which uncertainty is communicated: the wave plot, the v-plot, and color transparency.

DISCUSSION

We reflect on the methods, design iterations, decision-making process, and document lessons learned for future atlases.

CONCLUSION

The ACA has been hugely successful since launching in 2018. It has received over 62 000 individual users from over 100 countries and across all target audiences. It has been replicated in other countries and the second version of the ACA was launched in May 2024. This paper provides rich documentation for future projects.

摘要

目的

澳大利亚癌症地图集(ACA)旨在提供澳大利亚小区域癌症发病率和生存率的估计值,以帮助识别和解决地理卫生差异。我们报告了为期 21 个月的以用户为中心的设计研究,以可视化数据,特别是为多个受众可视化估计不确定性。

材料和方法

初步阶段包括范围界定研究、文献回顾和目标受众焦点小组。使用了多种方法来接触广泛的目标受众。设计和开发阶段包括与贝叶斯模型开发并行的数字原型制作。通过多次研讨会、受众焦点小组以及与外部专家咨询小组的定期会议,征求了反馈意见。

结果

最初的范围界定确定了 4 个目标受众群体:公众、研究人员、卫生保健从业者和政策制定者。在整个项目中咨询了这些目标群体,以确保开发的模型和不确定性可视化效果有效用于沟通。在本文中,我们详细介绍了 ACA 的功能和设计迭代,包括传达不确定性的 3 种互补方式:波图、v 图和颜色透明度。

讨论

我们反思了方法、设计迭代、决策过程,并记录了未来地图集的经验教训。

结论

自 2018 年推出以来,ACA 取得了巨大成功。它已经收到了来自 100 多个国家和所有目标受众的超过 62000 名个人用户。它已在其他国家复制,并于 2024 年 5 月推出了 ACA 的第二版。本文为未来的项目提供了丰富的文档。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d20f/11491590/2b3aca37fed4/ocae212f1.jpg

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