Johansen Mette, Laugesen Britt, Lauruschkus Katarina, Rasmussen Helle M
Department of Paediatrics and Adolescent Medicine, Aalborg University Hospital, Aalborg, Denmark.
Clinical Nursing Research Unit, Aalborg University Hospital, Aalborg, Denmark.
Disabil Rehabil. 2025 Jun;47(11):2709-2723. doi: 10.1080/09638288.2024.2400606. Epub 2024 Sep 12.
Physical activity is essential for maintaining overall health. Cost-effective and easily administered outcome instruments are valuable for clinical practice and large-scale population studies. The scoping review aimed to identify and map subjective instruments developed or validated to measure habitual physical activity and/or sedentary behaviour in children and adolescents with cerebral palsy aged 0-18 years across all levels of the GMFCS-E&R.
This scoping review was conducted in accordance with the JBI methodology for scoping reviews and searched the databases PubMed, CINAHL, Web of Science, Cochrane Database of Systematic Reviews, JBI Database of Systematic Reviews and Implementation Reports, Embase and Pedro to identify articles.
From 288 full-text references, 13 studies met the inclusion criteria. Nine instruments measured habitual physical activity and/or sedentary behaviour in children and adolescents with cerebral palsy aged 18 months to 18 years. Six subjective instruments were tested for ambulatory children, while three instruments were tested in children and adolescents at GMFCS-E&R level I-V.
Reporting of the psychometric properties were found on reliability in three instruments, while data on validity were reported in all instruments. Further studies assessing the psychometric properties of subjective instruments in the target population are needed.
身体活动对于维持整体健康至关重要。具有成本效益且易于管理的结果测量工具对于临床实践和大规模人群研究具有重要价值。本范围综述旨在识别和梳理已开发或验证的主观测量工具，以测量0至18岁脑性瘫痪儿童和青少年在GMFCS-E&R所有分级水平上的习惯性身体活动和/或久坐行为。
本范围综述按照JBI范围综述方法进行，检索了PubMed、CINAHL、科学网、Cochrane系统评价数据库、JBI系统评价与实施报告数据库、Embase和Pedro等数据库以识别文章。
从288篇全文参考文献中，有13项研究符合纳入标准。9种测量工具用于测量18个月至18岁脑性瘫痪儿童和青少年的习惯性身体活动和/或久坐行为。6种主观测量工具在能行走的儿童中进行了测试，而3种测量工具在GMFCS-E&R I-V级的儿童和青少年中进行了测试。
在3种测量工具中发现了关于信度的心理测量学特性报告，而所有测量工具均报告了效度数据。需要进一步开展研究评估目标人群中主观测量工具的心理测量学特性。
