Elmadani Mohammed, Klara Simon, Kiptulon Evans Kasmai, Andrade Diego, Orsolya Mate
Doctoral School of Health Sciences, Faculty of Health Sciences, University of Pecs, Pecs, Hungary,.
Res Dev Disabil. 2024 Dec;155:104867. doi: 10.1016/j.ridd.2024.104867. Epub 2024 Nov 2.
Cancer awareness and screening among individuals with intellectual disabilities face unique challenges. To bridge this gap, educational interventions have been developed.
This review comprehensively analyzes educational interventions aimed at enhancing cancer awareness among individuals with intellectual disabilities (IDs). It addresses key questions regarding intervention types and effectiveness, influencing factors, and recommendations for impactful programs.
A robust search strategy was deployed across reputable databases yielding 2512 articles. After meticulous screening and eligibility assessments, eight studies met the inclusion criteria, encompassing qualitative research, a feasibility study, and randomized control trials.
The studies employed diverse interventions and assessment methods, leading to varying outcomes. Interventions included educational materials, communication packs, health education DVDs, and healthcare professional support, typically delivered over a short period with limited follow-up. Assessment methods comprised surveys, interviews, and knowledge surveys. However, a comprehensive evaluation of knowledge gains and screening uptake was often absent. While some studies reported modest increases in knowledge, none measured actual screening uptake and long-term effects. The strengths and limitations of these studies underscore the need for more comprehensive research in this area, considering factors such as sample size, study design, and long-term impact.
In conclusion, this review provides valuable insights into educational interventions for cancer awareness among individuals with intellectual disabilities. Its comprehensive methodology and findings underscore the significance of tailoring interventions, extending their duration, and involving caregivers to optimize outcomes for this vulnerable population.
智障人士的癌症认知和筛查面临独特挑战。为了弥合这一差距,已开展了教育干预措施。
本综述全面分析旨在提高智障人士癌症认知的教育干预措施。它探讨了有关干预类型和效果、影响因素以及有效项目建议的关键问题。
在知名数据库中部署了强大的检索策略,共检索到2512篇文章。经过细致筛选和资格评估,八项研究符合纳入标准,包括定性研究、可行性研究和随机对照试验。
这些研究采用了多种干预措施和评估方法,导致了不同的结果。干预措施包括教育材料、沟通包、健康教育DVD以及医疗专业人员的支持,通常在短时间内实施且随访有限。评估方法包括调查、访谈和知识测试。然而,对知识增长和筛查接受情况的全面评估往往缺失。虽然一些研究报告知识有适度增加,但没有一项研究衡量实际的筛查接受情况和长期效果。这些研究的优势和局限性凸显了在该领域开展更全面研究的必要性,需考虑样本量、研究设计和长期影响等因素。
总之,本综述为智障人士癌症认知的教育干预提供了有价值的见解。其全面的方法和研究结果强调了量身定制干预措施、延长干预持续时间以及让照顾者参与的重要性,以便为这一弱势群体优化结果。