Chuang Ethan G, Richardson Andrew C, Boulil Zaineb, Kuelbs Cynthia L, Huang Jeannie S
Department of Pediatrics, University of California San Diego, San Diego, CA, USA.
Rady Children's Hospital, San Diego, CA, USA.
J Racial Ethn Health Disparities. 2025 Jun;12(3):1797-1803. doi: 10.1007/s40615-024-02009-w. Epub 2024 Nov 4.
Access to personal medical information promotes patient understanding of health issues and enables patient self-advocacy of healthcare needs. The advent of electronic medical record systems and the 2016 21st Century CURES Act promoted and encouraged patient access to personal medical information, yet technology-dependent modalities have often disadvantaged certain communities. We sought to evaluate whether disparities existed in access to patient portals at our institution, the main pediatric care provider in an area serving one million children.
We evaluated the activation of patient portal accounts at our institution over the past decade (2010-2021). Portal activation data were analyzed by ethnic background and language preference and income information available based on primary home access location. Further, we evaluated portal activation rates over time and across institutional interventions. A logistic regression model was used to identify important demographic associations with portal account status.
Over 1 million patients were served at our pediatric institution over the study period with 47.7% having ever activated their patient portals. Univariate analyses and ultimately logistic regression modeling demonstrated significant differences in portal activation by ethnicity (odds ratio (confidence interval):1.36 (1.34, 1.37)), language preference (1.39 (1.37, 1.40)), and median household income (1.00001 (1.00001, 1.00001)). Interim interventions were successful in improving portal activation rates.
Overall, electronic medical record portal activation was less prevalent among Hispanic, non-English speakers, and patients living in communities with lower median household income.
Opportunities for interventions exist to reduce healthcare disparities in these underserved communities.
获取个人医疗信息有助于患者了解健康问题,并能促使患者自我主张其医疗保健需求。电子病历系统的出现以及2016年的《21世纪治愈法案》推动并鼓励患者获取个人医疗信息,但依赖技术的方式往往使某些社区处于不利地位。我们试图评估在我们这个为100万儿童服务地区的主要儿科护理机构中,患者使用门户系统是否存在差异。
我们评估了过去十年(2010 - 2021年)在我们机构患者门户账户的激活情况。根据种族背景、语言偏好以及基于主要家庭访问地点可得的收入信息对门户激活数据进行分析。此外,我们评估了随时间推移以及跨机构干预的门户激活率。使用逻辑回归模型来确定与门户账户状态相关的重要人口统计学关联。
在研究期间,我们的儿科机构为超过100万名患者提供了服务,其中47.7%的患者曾激活过他们的患者门户。单因素分析以及最终的逻辑回归建模表明,在门户激活方面,种族(优势比(置信区间):1.36(1.34,1.37))、语言偏好(1.39(1.37,1.40))和家庭收入中位数(1.00001(1.00001,1.00001))存在显著差异。中期干预成功提高了门户激活率。
总体而言,电子病历门户激活在西班牙裔、非英语使用者以及家庭收入中位数较低社区的患者中不太普遍。
存在进行干预的机会,以减少这些服务不足社区的医疗保健差异。