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关于萨拉曼卡市肿瘤性虚弱癌症患者主要照料者负担的描述性研究。

Descriptive study on the overload of the main caregiver of cancer patients with tumour asthenia in Salamanca.

作者信息

Jiménez-Sánchez Samuel, Fernández-Rodríguez Eduardo José, García-Martín Alberto, Sánchez-Gómez Celia, Rihuete-Galve María Isabel

机构信息

Departamento de Enfermería y Fisioterapia, Universidad de Salamanca, Salamanca, Spain.

Departamento de Enfermería y Fisioterapia, Universidad de Salamanca, Salamanca, Spain; Instituto de Investigación Biomédica de Salamanca (IBSAL), Salamanca, Spain.

出版信息

Enferm Clin (Engl Ed). 2024 Nov-Dec;34(6):439-447. doi: 10.1016/j.enfcle.2024.11.007. Epub 2024 Nov 14.

Abstract

INTRODUCTION

The incidence of oncology patients is increasing due to the ageing of the population and advances in research leading to early diagnoses. This has resulted in an increase in the care required for patients at all stages of their illness. To describe the current situation of the overload of informal caregivers of cancer patients with tumour asthenia belonging to the Medical Oncology Service of the University Health Care Complex of Salamanca and the Palliative Care Unit of the Hospital de los Montalvos, we employed the following.

METHODS

This is a cross-sectional descriptive observational study conducted at the Complejo Asistencial Universitario de Salamanca and the Palliative Care Unit of the Hospital de los Montalvos from February to May 2023. The study involved 75 informal caregivers of oncology patients with tumour asthenia. Data was collected through interviews, which included sociodemographic information and measurement scales. The study employed the Barthel Scale, PERFORM questionnaire, and Reduced Zarit Caregiver Overload Scale to assess the informal caregivers' ability to care for cancer patients with tumour asthenia.

RESULTS

Of the caregivers, 58.7% were female, and the mean age was 60.0 years (±14.10). Over half (50.7%) of the caregivers experienced high levels of overload, making it impossible to care for the patient. Among patients with tumour asthenia, 37.3% were totally dependent, and 8.0% were moderately dependent. Of these caregivers, 58.7% had no prior caregiving experience, 80.7% had no training, and 77.3% never received help in caring for the patient.

CONCLUSIONS

In the Medical Oncology service of the Complejo Asistencial Universitario de Salamanca (CAUSA) and the Palliative Care Unit of the Hospital de los Montalvos, over one third of caregivers of oncology patients with tumour asthenia experienced caregiver overload. Variables such as the patient's age, the caregiver's age, the number of care hours, and the willingness to seek help can influence the perception of overload. This can worsen the effective care of the patient. It is important to consider these factors when providing care.

摘要

引言

由于人口老龄化以及研究进展带来的早期诊断,肿瘤患者的发病率正在上升。这导致了患者在疾病各个阶段所需护理的增加。为了描述萨拉曼卡大学医疗保健综合中心肿瘤内科服务部以及洛斯蒙塔尔沃斯医院姑息治疗科中患有肿瘤性乏力的癌症患者的非正式照料者负担过重的现状,我们采用了以下方法。

方法

这是一项于2023年2月至5月在萨拉曼卡大学医疗保健综合中心和洛斯蒙塔尔沃斯医院姑息治疗科进行的横断面描述性观察研究。该研究涉及75名患有肿瘤性乏力的肿瘤患者的非正式照料者。通过访谈收集数据,访谈内容包括社会人口学信息和测量量表。该研究采用巴氏量表、PERFORM问卷和简化版扎里特照料者负担量表来评估非正式照料者对患有肿瘤性乏力的癌症患者的照料能力。

结果

在照料者中,58.7%为女性,平均年龄为60.0岁(±14.10)。超过一半(50.7%)的照料者经历了高水平的负担,无法照料患者。在患有肿瘤性乏力的患者中,37.3%完全依赖他人,8.0%中度依赖他人。在这些照料者中,58.7%此前没有照料经验,80.7%没有接受过培训,77.3%在照料患者时从未得到过帮助。

结论

在萨拉曼卡大学医疗保健综合中心(CAUSA)的肿瘤内科服务部以及洛斯蒙塔尔沃斯医院的姑息治疗科,超过三分之一的患有肿瘤性乏力的肿瘤患者照料者经历了照料者负担过重的情况。患者年龄、照料者年龄、照料时长以及寻求帮助的意愿等变量会影响对负担过重的认知。这可能会使患者的有效护理恶化。在提供护理时考虑这些因素很重要。

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