Garland Beth H, Majumder Mary, Wiemann Constance M, Sanchez-Fournier Blanca, Babla Jordyn, Hergenroeder Albert C
Baylor College of Medicine and Texas Children's Hospital, Division of Adolescent Medicine and Sports Medicine, 6701 Fannin Street, Suite 1710, Houston, TX 77030, USA.
Baylor College of Medicine, Center for Medical Ethics and Health Policy, 1 Baylor Plz, Houston, TX 77030, USA.
Health Care Transit. 2024 Jul 5;2:100063. doi: 10.1016/j.hctj.2024.100063. eCollection 2024.
Health care transition (HCT) to adult care and young adult disease self-management is a multi-step process involving three major stakeholders - the adolescent, the caregiver, and the provider. Preparation gaps exist within each of these stakeholder groups. This paper presents the development of the Intervention to Promote Autonomy and Competence in Transition-aged Youth (IPACT), a multi-level (adolescent, caregiver, provider), multi-modal (interactive skill building sessions, educational materials, videos) intervention to address gaps in all three stakeholder groups simultaneously and help support achieving the three core elements of HCT planning.
Eight processes were utilized to develop the IPACT intervention, including reliance on existing literature and materials, stakeholder feedback at multiple points during development, and regular support and guidance from service liaisons within each of four tertiary-care clinics targeted for this intervention within a large, urban children's hospital.
IPACT includes the conceptual schema, logic model, intervention curriculum components, and implementation timeline. IPACT could be used by programs to simultaneously address gaps in stakeholder HCT planning knowledge and skills.
向成人护理和青年疾病自我管理的医疗保健过渡（HCT）是一个多步骤过程，涉及三个主要利益相关者——青少年、照顾者和提供者。这些利益相关者群体中的每一个都存在准备差距。本文介绍了促进过渡年龄青年自主和能力干预措施（IPACT）的开发，这是一种多层次（青少年、照顾者、提供者）、多模式（互动技能培训课程、教育材料、视频）的干预措施，旨在同时解决所有三个利益相关者群体中的差距，并帮助支持实现HCT规划的三个核心要素。
采用八个过程来开发IPACT干预措施，包括依赖现有文献和材料、在开发过程中的多个阶段征求利益相关者的反馈意见，以及来自一家大型城市儿童医院中针对该干预措施的四家三级护理诊所内的服务联络人员提供的定期支持和指导。
IPACT包括概念框架、逻辑模型、干预课程组成部分和实施时间表。项目可以使用IPACT来同时解决利益相关者在HCT规划知识和技能方面的差距。
