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一项生活方式教育课程作为重度哮喘患者生物制剂治疗辅助手段的可行性研究。

A lifestyle educational course as an adjunct to biologic administration in patients with severe asthma: A feasibility study.

作者信息

Lanario Joseph W, Davies Drew, Cartwright Lucy, Hyland Michael E, Masoli Matthew

机构信息

Faculty of Health, University of Plymouth, Plymouth, United Kingdom.

Department of Respiratory Medicine, Royal Devon and Exeter Hospital, University of Exeter, Exeter, United Kingdom.

出版信息

PEC Innov. 2024 Dec 18;6:100364. doi: 10.1016/j.pecinn.2024.100364. eCollection 2025 Jun.

Abstract

OBJECTIVE

To assess the feasibility and acceptability of adapting a psychoeducation course (Body Reprogramming) for severe asthma and finding suggestions for improvement.

METHODS

Severe asthma patients were recruited from a single centre and enrolled in an online group-based course. Each course consisted of four sessions: introduction to BR, stress, exercise, and diet. Participants were asked to complete questionnaires assessing HRQoL, mood, asthma and extra-pulmonary symptoms, pre/post course. Those who attended two or more sessions were invited to provide feedback in interviews.

RESULTS

Twenty-eight participants took part in one of the five courses. Thirteen (46 %) attended all four sessions and were sent post-course questionnaires, eight participants (62 %) returned them. Twelve participants provided post course feedback, Themes included: The course as a time to reflect, Appreciation of the group-format, Impact of pre-existing knowledge on enjoyment of the course and Areas of improvement. Maintaining course size, clarification of the course aims and methods were identified as areas of improvement by participants.

CONCLUSION

An educational course focused on managing extra-pulmonary symptoms is feasible and of perceived benefit to patients with severe asthma.

INNOVATION

BR could be incorporated into a rehab programme for patients with severe asthma with significant extrapulmonary symptoms.

摘要

目的

评估改编一门针对重度哮喘的心理教育课程(身体重新编程)的可行性和可接受性,并找出改进建议。

方法

从单一中心招募重度哮喘患者,并让他们参加一个基于网络小组的课程。每个课程包括四个单元:身体重新编程介绍、压力、运动和饮食。要求参与者在课程前后完成评估健康相关生活质量、情绪、哮喘及肺外症状的问卷。邀请参加了两个或更多单元的参与者在访谈中提供反馈。

结果

28名参与者参加了五个课程中的一个。13人(46%)参加了所有四个单元,并收到了课程后的问卷,8名参与者(62%)返还了问卷。12名参与者提供了课程后的反馈,主题包括:将课程作为反思的时间、对小组形式的认可、已有知识对课程体验的影响以及改进领域。参与者指出保持课程规模、明确课程目标和方法是需要改进的方面。

结论

一门专注于管理肺外症状的教育课程对重度哮喘患者是可行的且被认为有益。

创新点

身体重新编程可纳入针对有明显肺外症状的重度哮喘患者的康复计划。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9f70/11733048/d88a138201af/gr1.jpg

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