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调查健康领域学者在共享开放研究数据方面的做法和偏好。

Investigating the practices and preferences of health scholars in sharing open research data.

作者信息

Wibowo Muhamad Prabu, Mon Lorri

机构信息

Department of Library and Information Science, University of Indonesia, Depok, Jawa Barat, Indonesia.

School of Information, Florida State University, Tallahassee, Florida, United States of America.

出版信息

PLoS One. 2025 Feb 12;20(2):e0313644. doi: 10.1371/journal.pone.0313644. eCollection 2025.

Abstract

This survey-based study examines health science scholars' perceptions of collaborative research behavior and sharing open research data in university settings. A total of 362 health science scholars from U.S. universities participated in an online questionnaire consisting of 59 questions. Descriptive and inferential statistical analyses of the data included frequencies, cross-tabulations, descriptive ratio statistics, and the non-parametric Kruskal-Wallis one-way analysis of variance. Four open-ended questions were also analyzed to provide further insights into the survey findings. The study reveals that health scholars share their data with colleagues within their institution or project, demonstrating a lesser inclination toward open research data sharing practices through institutional repositories and journal supplements. Motivating factors and challenges influencing researchers' decisions to share their research data were also identified. While scientific and knowledge advancement served as major incentives, health scholars working with human-related data expressed concerns about privacy and confidentiality breaches, which are primary barriers to data sharing. Some participants indicated that requirements and policies also influenced their willingness to share data. Disciplinary variations were observed regarding data-sharing practices through journal supplements, secondary data analysis, and personal communication. Furthermore, significant differences emerged between funded and non-funded scholars, impacting their practices, motivations, and challenges in sharing open research data. Important factors driving health science scholars to share open research data include resources, policy compliance, and requirements. This study contributes valuable insights for policy development by investigating factors that can foster openness and sharing of research data in the health sciences. The findings shed light on the complexities and considerations associated with open data-sharing practices, enabling stakeholders to develop effective strategies and frameworks.

摘要

这项基于调查的研究考察了健康科学学者对大学环境中合作研究行为和开放研究数据共享的看法。来自美国大学的362名健康科学学者参与了一份包含59个问题的在线问卷。对数据进行的描述性和推断性统计分析包括频率、交叉制表、描述性比率统计以及非参数Kruskal-Wallis单因素方差分析。还对四个开放式问题进行了分析,以进一步深入了解调查结果。研究表明,健康科学学者会与所在机构或项目内的同事共享数据,但通过机构知识库和期刊增刊进行开放研究数据共享的意愿较低。研究还确定了影响研究人员共享研究数据决策的激励因素和挑战。虽然科学和知识进步是主要激励因素,但处理与人类相关数据的健康科学学者对隐私和保密性遭到侵犯表示担忧,这是数据共享的主要障碍。一些参与者表示,要求和政策也影响了他们共享数据的意愿。在通过期刊增刊、二次数据分析和个人交流进行数据共享的实践方面,观察到了学科差异。此外,获得资助和未获得资助的学者之间存在显著差异,这影响了他们在共享开放研究数据方面的实践、动机和面临的挑战。促使健康科学学者共享开放研究数据的重要因素包括资源、政策合规性和要求。这项研究通过调查可促进健康科学领域研究数据开放性和共享性的因素,为政策制定提供了有价值的见解。研究结果揭示了与开放数据共享实践相关的复杂性和需要考虑的因素,使利益相关者能够制定有效的策略和框架。

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本文引用的文献

1
Challenges with organization, discoverability and access in Canadian open health data repositories.
J Can Health Libr Assoc. 2021 Apr 2;42(1):45-65. doi: 10.29173/jchla29457. eCollection 2021 Apr.
2
Barriers and facilitators to qualitative data sharing in the United States: A survey of qualitative researchers.
PLoS One. 2021 Dec 31;16(12):e0261719. doi: 10.1371/journal.pone.0261719. eCollection 2021.
3
Open health data: Mapping the ecosystem.
Digit Health. 2021 Nov 10;7:20552076211050167. doi: 10.1177/20552076211050167. eCollection 2021 Jan-Dec.
4
Rapid health data repository allocation using predictive machine learning.
Health Informatics J. 2020 Dec;26(4):3009-3036. doi: 10.1177/1460458220957486. Epub 2020 Sep 24.
6
Reaping the benefits of Open Data in public health.
Can Commun Dis Rep. 2019 Oct 3;45(11):252-256. doi: 10.14745/ccdr.v45i10a01.
7
Making Open Science Work for Science and Society.
Environ Health Perspect. 2019 Jul;127(7):75002. doi: 10.1289/EHP4808. Epub 2019 Jul 29.
8
Sharing health research data - the role of funders in improving the impact.
F1000Res. 2018 Oct 15;7:1641. doi: 10.12688/f1000research.16523.2. eCollection 2018.
9
Who Owns the Data? Open Data for Healthcare.
Front Public Health. 2016 Feb 17;4:7. doi: 10.3389/fpubh.2016.00007. eCollection 2016.
10
Changes in Data Sharing and Data Reuse Practices and Perceptions among Scientists Worldwide.
PLoS One. 2015 Aug 26;10(8):e0134826. doi: 10.1371/journal.pone.0134826. eCollection 2015.

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