Krawczyk Marian, Solbrække Kari Nyheim, Thoresen Lisbeth
End of Life Studies, School of Social and Environmental Sustainability, University of Glasgow, Glasgow, United Kingdom.
Department of Interdisciplinary Health Sciences, Faculty of Medicine, University of Oslo, Oslo, Norway.
Front Sociol. 2025 Jan 30;9:1387096. doi: 10.3389/fsoc.2024.1387096. eCollection 2024.
More people are surviving cancer than ever before. While there is a growing body of research on quality of life in cancer survivorship, we still do not have a good understanding of the lived complexities that many people experience after successful treatment. Inspired by the literature on existential concerns in cancer survivorship, we consider how the concept of 'total pain', which emerged from the contemporary hospice movement, may be useful to think about experiences of suffering in cancer survivorship, using interviews from a Norwegian research project . We find that the concept of total pain encapsulates concerns for existential suffering and also has unique features which offer new forms of understanding and action. This includes its origins within cancer care; how it addresses the individual as a whole and re-centres the body; its reliance on and recognition of the limits of narrative; how it attends to relationality; and how the concept may afford unique insights for service development. Dying from cancer and surviving cancer are different processes, but total pain can serve as a useful conceptual compass to orient our understandings of those who experience this illness, regardless of disease outcome.
如今,癌症幸存者的数量比以往任何时候都多。虽然关于癌症幸存者生活质量的研究越来越多,但我们仍然没有很好地理解许多人在成功治疗后所经历的复杂生活。受癌症幸存者生存问题相关文献的启发,我们利用挪威一个研究项目的访谈,思考当代临终关怀运动中出现的“全面疼痛”概念,对于理解癌症幸存者的痛苦经历可能有何帮助。我们发现,全面疼痛的概念涵盖了对生存痛苦的关注,并且具有独特的特征,能提供新的理解和行动方式。这包括它在癌症护理中的起源;它如何将个体视为一个整体并重新关注身体;它对叙事局限性的依赖和认识;它对关联性的关注;以及这个概念如何为服务发展提供独特的见解。死于癌症和从癌症中幸存是不同的过程,但无论疾病结果如何,全面疼痛都可以作为一个有用的概念指南,帮助我们理解那些经历这种疾病的人。