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“我应该向她学习”:感染艾滋病毒的母亲及其子女的多系统复原力

"I should learn from her": Multisystem resilience among mothers living with HIV and their children.

作者信息

Goodrum Nada M, Carroll Jamee S, Huynh Tuyen, Nguyen Julie K

机构信息

Department of Psychology, University of South Carolina.

Child Guidance Clinic, Superior Court of the District of Columbia.

出版信息

J Fam Psychol. 2025 Jun 2. doi: 10.1037/fam0001353.

Abstract

The U.S. HIV epidemic disproportionately impacts Black/African American and Latina women. Many women living with HIV are primary caregivers for children, often navigating the unique stressors of parenting while managing their chronic illness. Though much research focuses on challenges facing this population, a strengths-based approach may highlight important avenues for prevention and intervention. Guided by the family stress model and multilevel resilience frameworks, this qualitative study explored factors promoting well-being and parent-child relationship-based resilience at the individual, family, and community levels. The sample included 14 mothers or other female caregivers living with HIV (MLH) and 13 children aged 9-16 ( = 27; 50% Latine, 42.9% Black/African American, 7.1% multiracial). Individual interviews were conducted with mothers and children following participation in a larger randomized controlled trial focused on HIV disclosure. Four broad themes and several subthemes emerged, including individual resilience of each child and parent, shared resilience within the dyad, and community resources and sources of resilience. Examples of resilience factors included children's internal assets (e.g., optimism), mothers' ability to cope with their illness, parent-child closeness, positive adaptation to HIV disclosure, and access to community supports. Notably, factors that contributed to shared resilience were identified as particularly unique and impactful in this population. Further, parents and children highlighted children's emotional and behavioral stability following disclosure as an important indicator of resilience. Overall, MLH and their children offered insight into the cultivation of both individual and shared resilience experiences, highlighting potential targets for strengths-based family interventions that further bolster these resilience processes. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

摘要

美国的艾滋病疫情对黑人/非裔美国女性和拉丁裔女性的影响尤为严重。许多感染艾滋病毒的女性是孩子的主要照顾者,她们在应对慢性病的同时,还要应对为人父母所特有的压力源。尽管许多研究关注的是这一人群所面临的挑战,但基于优势的方法可能会突出预防和干预的重要途径。在家庭压力模型和多层次复原力框架的指导下,这项定性研究探讨了在个人、家庭和社区层面促进幸福感和基于亲子关系的复原力的因素。样本包括14名感染艾滋病毒的母亲或其他女性照顾者以及13名9至16岁的儿童(共27人;50%为拉丁裔,42.9%为黑人/非裔美国人,7.1%为多种族)。在参与一项关于艾滋病病毒披露的大型随机对照试验后,对母亲和孩子进行了单独访谈。出现了四个广泛的主题和几个子主题,包括每个孩子和父母的个人复原力、二元组内的共同复原力以及社区资源和复原力来源。复原力因素的例子包括孩子的内在资产(如乐观)、母亲应对疾病的能力、亲子亲密关系、对艾滋病病毒披露的积极适应以及获得社区支持。值得注意的是,促成共同复原力的因素在这一人群中被认为特别独特且具有影响力。此外,父母和孩子强调,披露后孩子的情绪和行为稳定性是复原力的一个重要指标。总体而言,感染艾滋病毒的母亲及其孩子深入了解了个人和共同复原力体验的培养,突出了基于优势的家庭干预的潜在目标,这些干预可以进一步加强这些复原力过程。(PsycInfo数据库记录(c)2025美国心理学会,保留所有权利)

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