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双相情感障碍患者家庭面临经济限制和污名化的双重负担以及隔离:来自印度泰米尔纳德邦的建构主义扎根理论分析

Double Burden of Financial Constraints and Stigma with Isolation of Families of Bipolar Mood Disorder Patients: A Constructivist Grounded Theory Analysis from Tamil Nadu, India.

作者信息

Kala Vrinda Sankar, R Arul Saravanan, Muraleedharan Manesh, Jadhav Sammita, Trivedi Tanay

机构信息

Dept. of Psychiatry, SRM Medical College Hospital and Research Centre, SRM Institute of Science and Technology, Chennai, Tamil Nadu, India.

Symbiosis Institute of Health Sciences, Symbiosis International (Deemed University), Pune, Maharashtra, India.

出版信息

Indian J Psychol Med. 2025 Jun 17:02537176251346955. doi: 10.1177/02537176251346955.

Abstract

BACKGROUND

The family members of the bipolar patients are subjected to stigma and mental and physical abuse by the bipolar patient. This can reflect as expressed emotion and ultimately affect the financial and physical well-being of the patient and family members.

OBJECTIVE

The aim of this study was to understand various challenges faced by caregivers of bipolar disorder patients and their families, including emotional well-being, and financial challenges, as well as community and health system support.

METHODS

A constructivist grounded theory approach is used to understand the issue and develop themes.

RESULTS

Caregiving for individuals with bipolar disorder often presents gender-related differences, as women experiencing greater emotional burden and stress compared to men, who may focus more on financial and emotional support. These responsibilities are further complicated by financial constraints related to treatment, as the high costs of medication, therapy, and hospitalizations can be overwhelming, especially for families with limited resources or inadequate insurance coverage. Additionally, stigma and isolation significantly impact both patients and caregivers, as societal misconceptions, workplace discrimination, and excessive concern from the community can lead to withdrawal and reluctance to seek help, worsening mental health outcomes.

CONCLUSIONS

Gender-based disparity in the well-being of caregivers of mental disorders is a neglected issue, which needs further research and support. Also, health system strengthening and community education are essential to improve the well-being of family members and caregivers of bipolar disorder patients.

摘要

背景

双相情感障碍患者的家庭成员会遭受该患者施加的污名化以及精神和身体虐待。这可能表现为情感表达,并最终影响患者及其家庭成员的经济状况和身体健康。

目的

本研究的目的是了解双相情感障碍患者的照料者及其家庭所面临的各种挑战,包括情感健康、经济挑战以及社区和卫生系统支持。

方法

采用建构主义扎根理论方法来理解该问题并形成主题。

结果

照料双相情感障碍患者往往存在与性别相关的差异,女性比男性承受更大的情感负担和压力,而男性可能更侧重于经济和情感支持。与治疗相关的经济限制使这些责任更加复杂,因为药物、治疗和住院的高昂费用可能不堪重负,尤其是对于资源有限或保险覆盖不足的家庭。此外,污名化和孤立对患者和照料者都有显著影响,因为社会误解、工作场所歧视以及社区的过度关注会导致退缩和不愿寻求帮助,从而使心理健康状况恶化。

结论

精神障碍照料者的幸福感中基于性别的差异是一个被忽视的问题,需要进一步研究和支持。此外,加强卫生系统和社区教育对于改善双相情感障碍患者家庭成员和照料者的幸福感至关重要。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1af4/12176796/b2f3eaa6a6d3/10.1177_02537176251346955-fig1.jpg

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