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自闭症儿童家长创伤后成长的现状及影响因素:一项质性研究

The current situation and influencing factors of posttraumatic growth in parents of children with autism: a qualitative study.

作者信息

Hong Ming, Lv Sansan

机构信息

Guangdong Provincial Key Laboratory of Development and Education for Special Needs Children, Zhanjiang, 524048, Guangdong, China.

Department of Psychology, Lingnan Normal University, Zhanjiang, 524048, Guangdong, China.

出版信息

BMC Psychol. 2025 Jul 1;13(1):646. doi: 10.1186/s40359-025-03059-3.

Abstract

BACKGROUND

There is relatively little research in China on the current situation and influencing factors of PTG of parents of children with autism, and the research conclusions are inconsistent. Quantitative research is difficult to deeply depict the dynamic process of PTG of parents of children with autism, and cannot deeply explore the main factors affecting PTG. However, qualitative research has a unique advantage in this regard.

METHODS

15 parents of autistic children from China participated in the present study. Data collected by one to one in-depth interview which was analyzed by thematic analysis.

RESULTS

Four themes yielded. They are: significant increase in personal strength; significant improvement in interpersonal relationships; continuously deepening life perception; worry and confusion about the child's future. The main influencing factors of PTG of parents of autistic children include the support of significant others and the partners, family income, cultural context, social reality and parents' roles.Parents who experience traumatic events value money more than before, which is different from previous research findings.

CONCLUSIONS

The current status and influencing factors of PTG of Chinese parents of autistic children are different from existing research results and have the characteristics of Chinese cultural context. However, more research results are needed to test it.

摘要

背景

中国关于自闭症儿童家长创伤后成长(PTG)的现状及影响因素的研究相对较少,且研究结论不一致。定量研究难以深入刻画自闭症儿童家长PTG的动态过程,无法深入探究影响PTG的主要因素。然而,定性研究在这方面具有独特优势。

方法

15名来自中国的自闭症儿童家长参与了本研究。通过一对一深度访谈收集数据,并采用主题分析法进行分析。

结果

得出四个主题。它们分别是:个人力量显著增强;人际关系显著改善;生活感悟不断深化;对孩子未来的担忧与困惑。自闭症儿童家长PTG的主要影响因素包括重要他人及伴侣的支持、家庭收入、文化背景、社会现实和家长角色。经历过创伤事件的家长比以前更看重金钱,这与以往研究结果不同。

结论

中国自闭症儿童家长PTG的现状及影响因素与现有研究结果不同,具有中国文化背景的特点。然而,需要更多的研究结果来验证这一点。

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