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韩国肺移植受者照顾者的生活经历

Lived Experience of Caregivers of Lung Transplant Recipients in Korea.

作者信息

Son Haeng-Mi, Min Kyoungok, Hwang Younghui

机构信息

Department of Nursing, College of Medicine, University of Ulsan, 93 Daehak-ro, Nam-gu, Ulsan 44610, Republic of Korea.

Department of Transplant Center, Seoul National University Hospital, 101 Daehak-ro, Jongno-gu, Seoul 03080, Republic of Korea.

出版信息

Healthcare (Basel). 2025 Jul 4;13(13):1608. doi: 10.3390/healthcare13131608.

Abstract

This study aimed to explore the underlying meaning and structure of the experiences of caregivers with lung transplant recipients using phenomenological research methods. : Data were collected between February 2020 and December 2021 via in-depth individual interviews with nine caregivers of lung transplant recipients. The meaning of the participants' experiences was analyzed using Colaizzi's phenomenological analysis to ensure methodological rigor. Researchers minimized bias through reflexivity and member checking, and the study adhered to ethical standards to ensure trustworthiness. Participants cared for patients who had not fully crossed the threshold of death without giving up hope for a cure. They did not avoid caregiving as a responsibility to their families but accepted it as their responsibility. The lives of the participants became increasingly immersed as they witnessed the process of the patient's illness and gained insights into patience and gratitude through the caregiving experience. This study's findings can help assess the needs of lung transplant recipients and their caregivers and guide interventions that address their reciprocal relationship. It also emphasizes the importance of ongoing education and expanded social care services to reduce caregiver stress and burden.

摘要

本研究旨在运用现象学研究方法,探索肺移植受者的照顾者经历的潜在意义和结构。2020年2月至2021年12月期间,通过对9名肺移植受者的照顾者进行深入的个人访谈收集数据。运用科莱齐的现象学分析方法分析参与者经历的意义,以确保方法的严谨性。研究人员通过反思和成员核对将偏差降至最低,并且该研究遵循道德标准以确保可信度。参与者照顾那些尚未完全跨越死亡门槛但对治愈仍抱有希望的患者。他们没有将照顾视为对家庭的责任而加以回避,而是将其作为自己的责任接受下来。随着参与者见证患者的患病过程,他们的生活越来越多地融入其中,并通过照顾经历获得了耐心和感恩的感悟。本研究的结果有助于评估肺移植受者及其照顾者的需求,并指导针对他们相互关系的干预措施。它还强调了持续教育和扩大社会护理服务以减轻照顾者压力和负担的重要性。

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Lung Transplantation.肺移植
N Engl J Med. 2024 Nov 14;391(19):1822-1836. doi: 10.1056/NEJMra2401039.
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Critical Care of the Lung Transplant Patient.肺移植患者的重症监护
Clin Chest Med. 2022 Sep;43(3):457-470. doi: 10.1016/j.ccm.2022.04.007.
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The Lived Experiences of Caregivers of Lung Transplant Recipients.肺移植受者照顾者的生活体验。
Prog Transplant. 2021 Dec;31(4):299-304. doi: 10.1177/15269248211046034. Epub 2021 Oct 27.

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