Mage Susanna, Benton Donna, Wilber Kathleen, Aguila Rodriguez Rocio, Silva David, Gonzalez Alexander, Puga Frank, Meyer Kylie
Leonard Davis School of Gerontology, University of Southern California, 3715 McClintock Avenue, Los Angeles, CA, 90089, United States, 1 213 740 5156.
Frances Payne Bolton School of Nursing, Case Western Reserve University, Cleveland, OH, United States.
JMIR Form Res. 2025 Jul 15;9:e70471. doi: 10.2196/70471.
Latino caregivers of persons living with dementia face distinct financial challenges, spending nearly half of their annual household income on caregiving expenses, almost twice as much as non-Latino caregivers. Cultural norms, limited access to financial resources, and underrepresentation in intervention research compound this economic burden. There remains a critical gap in evidence-based, culturally tailored programs designed to reduce financial stress among Latino caregivers.
This study examines the acceptability and perceived value of the Confidently Navigating Financial Decisions and Enhancing Financial Well-Being in Dementia Caregiving (CONFIDENCE) program, a culturally tailored, web-based psychoeducational intervention designed to reduce financial stress and improve financial well-being among Latino caregivers of persons living with dementia.
We applied a multimethod approach to evaluate the acceptability of the CONFIDENCE pilot. Following completion, 14 caregivers participated in in-depth, semistructured interviews, and 27 (39% of program participants) completed a 14-item satisfaction survey. The study was guided by a theoretical framework of acceptability composed of 7 domains: affective attitude, burden, ethicality, intervention coherence, opportunity costs, perceived effectiveness, and self-efficacy. Interview transcripts were analyzed independently by 4 coders (SM, RAR, DS, and KM) using thematic analysis, and survey responses were summarized using descriptive statistics.
Participants overall reported satisfaction with the CONFIDENCE program. Qualitative analysis of interview transcripts revealed four themes: (1) the perceived need for financial intervention; (2) perceived intervention effectiveness, particularly in improving financial knowledge, communication skills, and mental health; (3) positive emotional responses to participation, with high praise for the program's group setting and cultural relevance; and (4) recommendations for intervention improvement, including shorter sessions and technology support. Survey results confirmed high acceptability, with 96% (n=26) of respondents reporting they enjoyed the program. All participants (n=27, 100%) said they would recommend CONFIDENCE to other Latino caregivers. Participants reported improved awareness of available resources, increased confidence in financial decision-making, and reduced financial stress. Caregivers appreciated the group setting, which allowed for mutual interaction and learning; discussions fostered emotional connection and peer learning. Participants praised the content's trustworthiness and relevance. Although most agreed that participation required minimal effort, barriers such as time constraints and technology challenges were noted.
Findings suggest that CONFIDENCE is acceptable among Latino caregivers of persons living with dementia. Culturally tailored content, group learning, and an emphasis on practical financial strategies were central to the program's success. Findings will inform program refinements, including limiting burden by addressing barriers while maintaining strengths such as group learning to optimize engagement. Considering the unique economic burdens Latino caregivers face, it is vital to develop and support interventions tailored to their unique needs. This study adds to the limited but growing literature on financial well-being interventions for Latino caregivers and highlights the value of culturally informed, community-driven approaches to supporting caregiver financial resilience.
痴呆症患者的拉丁裔照料者面临着独特的经济挑战,他们将近一半的家庭年收入用于照料费用,几乎是非拉丁裔照料者的两倍。文化规范、获取资金资源的机会有限以及在干预研究中的代表性不足,加剧了这一经济负担。在旨在减轻拉丁裔照料者经济压力的循证、文化适配项目方面,仍存在重大差距。
本研究考察了“痴呆症照料中自信应对财务决策并提升财务福祉”(CONFIDENCE)项目的可接受性和感知价值,该项目是一个文化适配的、基于网络的心理教育干预项目,旨在减轻痴呆症患者拉丁裔照料者的经济压力并改善其财务福祉。
我们采用多方法评估CONFIDENCE试点项目的可接受性。项目结束后,14名照料者参与了深入的半结构化访谈,27名(占项目参与者的39%)完成了一项14项的满意度调查。该研究以一个由七个领域组成的可接受性理论框架为指导:情感态度、负担、道德性、干预连贯性、机会成本、感知有效性和自我效能感。4名编码员(SM、RAR、DS和KM)使用主题分析法对访谈记录进行独立分析,并使用描述性统计对调查回复进行总结。
参与者总体上对CONFIDENCE项目表示满意。对访谈记录的定性分析揭示了四个主题:(1)对财务干预的感知需求;(2)感知到的干预有效性,特别是在提高财务知识、沟通技巧和心理健康方面;(3)对参与的积极情绪反应,对项目的小组形式和文化相关性给予高度评价;(4)对干预改进的建议,包括缩短课程时长和提供技术支持。调查结果证实了该项目具有较高的可接受性,96%(n = 26)的受访者表示他们喜欢这个项目。所有参与者(n = 27,100%)表示他们会向其他拉丁裔照料者推荐CONFIDENCE项目。参与者报告称,他们对可用资源的认识有所提高,在财务决策方面的信心增强,经济压力减轻。照料者赞赏小组形式,它允许相互交流和学习;讨论促进了情感联系和同伴学习。参与者称赞内容的可信度和相关性。尽管大多数人认为参与所需的努力 minimal,但也提到了时间限制和技术挑战等障碍。
研究结果表明,CONFIDENCE项目在痴呆症患者的拉丁裔照料者中是可接受的。文化适配的内容、小组学习以及对实用财务策略的强调是该项目成功的关键。研究结果将为项目改进提供参考,包括通过解决障碍来减轻负担,同时保持小组学习等优势以优化参与度。鉴于拉丁裔照料者面临的独特经济负担,开发并支持针对其独特需求的干预措施至关重要。本研究为关于拉丁裔照料者财务福祉干预措施的有限但不断增长的文献增添了内容,并强调了以文化为导向、社区驱动的方法在支持照料者财务复原力方面的价值。