Simmons Johanna, Floberg Elida, Casselgren Christina, Westerlind Björn, Sandberg Jonas, Swahnberg Katarina, Nägga Katarina, Ludvigsson Mikael, Johansson Linda
Department of Geriatrics and Palliative Medicine, Department of Health, Medicine and Caring Sciences, Linköping University, Linköping, Sweden.
Department of Internal Medicine and Geriatrics in Eksjö, Region Jönköping County, Eksjö, Sweden.
BMC Geriatr. 2025 Aug 25;25(1):660. doi: 10.1186/s12877-025-06291-z.
Abuse of older people is common and people living with dementia are at high risk of being subjected to abuse. This study protocol describes the development and procedure to test the validity of two new screening instruments to detect abuse of people with dementia: 1) The REAGERA-S20, intended to be answered by people with dementia themselves, including questions about their abusive experiences, and 2) The REAGERA - N, intended to be answered by the next of kin of people with dementia, including questions about their own exposure to abuse, their own perpetration as well as the witnessing of abusive acts. In addition, the Risk on Elder Abuse and Mistreatment Instrument (REAMI) is translated into Swedish within the project and will be validated. Finally, qualitative interviews are conducted to explore the experiences of abuse from the perspective of both the person with dementia and the next of kin.
People with mild to moderate dementia (n = 80) and their next of kin (n = 80) are recruited at health and social care facilities providing care to people with dementia. In cases of severe dementia, only next of kin is included. At the time of data collection, participants fill out the instruments and are thereafter interviewed, first separately and then jointly by researchers about their abusive experiences. The interviews are used as a gold standard for calculating the properties of the instruments, e.g., sensitivity and specificity, but will also be used for qualitative analysis concerning the experiences of abuse. Health and social care professionals that are well acquainted with the participants fill out the REAMI and results will be validated using the results of the interviews as the gold standard.
This study protocol describes a research project that aims towards a comprehensive identification and understanding of abuse of people with dementia by including the perspective of both people with dementia themselves, their next of kin and professionals. If the instruments are found to be reliable they can be used to detect abuse in people with dementia. Also, the qualitative interviews with participants will enhance our understanding of abuse of people with dementia.
ClinicalTrials.gov Identifier: NCT06659822. Retrospectively registered on October 25 2024.
虐待老年人的现象很常见，患有痴呆症的人遭受虐待的风险很高。本研究方案描述了两种用于检测痴呆症患者虐待情况的新筛查工具有效性测试的开发和程序：1）REAGERA-S20，旨在由痴呆症患者自己回答，包括关于他们受虐待经历的问题；2）REAGERA-N，旨在由痴呆症患者的近亲回答，包括关于他们自己遭受虐待、实施虐待以及目睹虐待行为的问题。此外，《老年人虐待和不当对待风险工具》（REAMI）在该项目中被翻译成瑞典语并将进行验证。最后，进行定性访谈，从痴呆症患者及其近亲的角度探索虐待经历。
在为痴呆症患者提供护理的健康和社会护理机构招募轻度至中度痴呆症患者（n = 80）及其近亲（n = 80）。对于重度痴呆症患者，仅纳入其近亲。在数据收集时，参与者填写这些工具，之后接受访谈，首先分别接受研究人员的访谈，然后由研究人员共同询问他们的虐待经历。这些访谈被用作计算工具特性（如敏感性和特异性）的金标准，但也将用于关于虐待经历的定性分析。与参与者非常熟悉的健康和社会护理专业人员填写REAMI，结果将以访谈结果作为金标准进行验证。
本研究方案描述了一个研究项目，旨在通过纳入痴呆症患者本人、其近亲以及专业人员的视角，全面识别和理解对痴呆症患者的虐待情况。如果这些工具被证明是可靠 的，它们可用于检测痴呆症患者中的虐待情况。此外，对参与者的定性访谈将增进我们对痴呆症患者虐待情况的理解。
ClinicalTrials.gov标识符：NCT06659822。于2024年10月25日追溯注册。
Zotero 插件