Trindade Paula Gasparini Emery, Dourado Marcia Cristina Nascimento
Universidade Federal do Rio de Janeiro, Rio de Janeiro, Brasil.
Cad Saude Publica. 2025 Aug 22;41(8):e00173224. doi: 10.1590/0102-311XEN173224. eCollection 2025.
Different perspectives with regards to illness may be influenced by distinct cultures. The aim of the present study was to explore illness representations of the part of Brazilians with Alzheimer's disease (AD). A qualitative study was conducted involving 12 participants with mild and moderate AD using a semi-structured interview guide. Interpretative Phenomenological Analysis was used to guide the analysis of the participants' accounts, resulting in themes that formed five categories. The biological category (six participants) emerged from a group that acknowledged their memory deficits. Two participants from this group mentioned memory deficits and labeled their condition as a disease without the use of diagnostic labels. Three participants from this category recognized memory deficits and related their difficulties to the aging process. The psychosocial category resulted from the accounts of two participants who acknowledged memory deficits and attributed such deficits to the erosion of memory function as well as troubles with day-to-day stress. A mixed category (one participant) included biological, psychosocial, and cultural aspects. The participant labeled the disease as "Zazá", which was considered a cultural euphemism. Two additional categories were identified: one with two participants uncertain of how to make sense of their condition and the last one included one participant who was unaware of her condition. The present results show that illness representations of individuals with AD are influenced by emotional, social, and cultural contexts, and are also deeply embedded in individual coping mechanisms.
关于疾病的不同观点可能受到不同文化的影响。本研究的目的是探讨巴西阿尔茨海默病(AD)患者对疾病的认知。采用半结构化访谈指南,对12名轻度和中度AD患者进行了定性研究。运用解释现象学分析来指导对参与者叙述的分析,得出的主题形成了五个类别。生物学类别(6名参与者)来自一组承认自己存在记忆缺陷的人。该组中有两名参与者提到了记忆缺陷,并在未使用诊断标签的情况下将自己的状况称为疾病。该类别中的三名参与者认识到记忆缺陷,并将他们的困难与衰老过程联系起来。心理社会类别源于两名参与者的叙述,他们承认存在记忆缺陷,并将这些缺陷归因于记忆功能的衰退以及日常压力带来的困扰。一个混合类别(1名参与者)包括生物学、心理社会和文化方面。该参与者将这种疾病称为“扎扎”,这被认为是一种文化委婉说法。还确定了另外两个类别:一个类别中有两名参与者不确定如何理解自己的状况,最后一个类别中有一名参与者未意识到自己的状况。目前的结果表明,AD患者对疾病的认知受到情感、社会和文化背景的影响,并且也深深植根于个体的应对机制之中。