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癫痫的社会历程:中国内陆地区慢性病的社会体验

The social course of epilepsy: chronic illness as social experience in interior China.

作者信息

Kleinman A, Wang W Z, Li S C, Cheng X M, Dai X Y, Li K T, Kleinman J

机构信息

Department of Social Medicine, Harvard University, Cambridge, MA, USA.

出版信息

Soc Sci Med. 1995 May;40(10):1319-30. doi: 10.1016/0277-9536(94)00254-q.

Abstract

Findings are reported from a collaborative research project on the experience of epilepsy and treatment among patients and family members in Shanxi and Ningxia Provinces in China. Family, marriage, financial and moral consequences of the social experience of epilepsy support the conceptualization of chronic illness as possessing a social course. Beyond traditional concern with stigma, application of concepts of delegitimation, sociosomatic processes, coping as resistance, contestation in the evaluation of efficacy and compliance, and the cultural ontology of suffering illustrate other ways that social theory is useful in research on chronic illness and disability.

摘要

本文报告了一项关于中国山西省和宁夏回族自治区癫痫患者及其家庭成员的癫痫经历与治疗情况的合作研究项目结果。癫痫社会经历所带来的家庭、婚姻、经济和道德方面的影响,支持了将慢性病视为具有社会进程的概念。除了传统上对污名化的关注外,去合法化概念、社会躯体过程、作为抵抗的应对方式、疗效和依从性评估中的争议以及痛苦的文化本体论的应用,都说明了社会理论在慢性病和残疾研究中的其他有用方式。

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