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帕金森病患者的医学、社会及功能概况。

The medical, social, and functional profile of Parkinson's disease patients.

作者信息

Lee K S, Merriman A, Owen A, Chew B, Tan T C

机构信息

Department of Medicine, National University Hospital, Singapore.

出版信息

Singapore Med J. 1994 Jun;35(3):265-8.

PMID:7997900
Abstract

The study looked at the medical, social, and functional aspects of 34 patients with idiopathic Parkinson's Disease (PD). Eighty-five percent were above 55 years and 35% were over 70 years. Twenty-four (71%) were males. Most patients had Stage II disease. Overall functional state of the patient correlated closely with the stage of Parkinson's disease. Patients were likely to be dependent if their disease severity was stage III or more. Eighteen (53%) patients would require a carer to be present at least part of the day and 3 (9%) patients would require a carer most of the time. Domestic chores such as meal preparation, housework, and shopping were also affected in most of those who were previously active in these tasks. Ten patients had given up work due to their Parkinson's disease. The lack of knowledge of the disease was shown both in the carers and the patients. Twenty-nine of the patients had no knowledge of the disease, and only one carer had superficial knowledge of the disease. The major social problems associated with the disease were loss of social contact, behavioural problems, family members under strain and communication problems within the family. Since Parkinson's Disease is a chronic illness, with associated disabilities, it is important that the physician should aim for a multidisciplinary approach. Patient and carer education should be given emphasis, and the many everyday functional problems addressed. Advice on life-style management and aids to overcome disabilities may help improve quality of life of the patient and reduce carer's stress.

摘要

该研究观察了34例特发性帕金森病(PD)患者的医学、社会和功能方面的情况。85%的患者年龄在55岁以上,35%的患者年龄超过70岁。24例(71%)为男性。大多数患者处于疾病Ⅱ期。患者的总体功能状态与帕金森病的阶段密切相关。如果疾病严重程度达到Ⅲ期或更高,患者很可能需要依赖他人。18例(53%)患者至少在一天中的部分时间需要有护理人员在场,3例(9%)患者大部分时间都需要护理人员。大多数以前从事诸如准备饭菜、家务和购物等家务劳动的患者,这些活动也受到了影响。10例患者因帕金森病而放弃了工作。护理人员和患者对该疾病都缺乏了解。29例患者对该疾病一无所知,只有一名护理人员对该疾病有肤浅的了解。与该疾病相关的主要社会问题包括社交联系的丧失、行为问题、家庭成员压力过大以及家庭内部的沟通问题。由于帕金森病是一种伴有相关残疾的慢性疾病,医生采用多学科方法至关重要。应重视对患者和护理人员的教育,并解决许多日常功能问题。关于生活方式管理的建议以及帮助克服残疾的辅助手段可能有助于提高患者的生活质量并减轻护理人员的压力。

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