Cox L H
U.S. Environmental Protection Agency, National Exposure Research Laboratory, Research Triangle Park, NC 27711, USA.
Stat Med. 1996;15(17-18):1895-905. doi: 10.1002/(SICI)1097-0258(19960915)15:17<1895::AID-SIM401>3.0.CO;2-W.
Public policy decisions are fuelled by information. Often, this information is in the form of statistical data. Questions stemming from public health and environmental concerns often arise or are studied within small subgroups of a population. Continuing improvements in the performance and availability of computing resources, including geographic information systems, and the need to better understand environmental exposures and consequent health effects create increasing demand for small population health and environmental data. These demands are at odds with the need to preserve the privacy and data confidentiality of persons, groups or organizations covered by the data. Although confidentiality issues for demographic and economic data are well-studied and are gaining maturity for health data, these issues are only beginning to emerge for environmental data and combined environmental-health data. The aim of this paper is to provide a framework for that examination. Herein we examine confidentiality problems posed by small population health and environmental data, summarize available statistical methods, and propose avenues for the solution of new problems.
公共政策决策由信息推动。通常,这些信息以统计数据的形式呈现。源于公共卫生和环境问题的疑问往往在人群的小亚组中出现或得到研究。包括地理信息系统在内的计算资源在性能和可用性方面的持续改进,以及更好地了解环境暴露及其对健康的后续影响的需求,使得对小群体健康和环境数据的需求不断增加。这些需求与保护数据所涵盖的个人、群体或组织的隐私和数据保密性的需求相矛盾。尽管人口和经济数据的保密性问题已得到充分研究,并且在健康数据方面正日益成熟,但这些问题在环境数据以及环境与健康综合数据方面才刚刚开始出现。本文的目的是提供一个进行该审查的框架。在此,我们研究小群体健康和环境数据所带来的保密性问题,总结可用的统计方法,并提出解决新问题的途径。