Scazufca M, Kuipers E
Department of Psychology, Institute of Psychiatry, London.
Psychol Med. 1998 Mar;28(2):453-61. doi: 10.1017/s0033291797005977.
There is evidence that high expressed emotion (EE) in relatives of patients with schizophrenia is associated with higher levels of burden of care, and with worse perception of patient's social functioning. However, it is not clear whether changes in EE levels over time are associated with changes in relatives' burden of care and their perception of patients' social functioning.
Fifty patients with a diagnosis of schizophrenia and 50 relatives were included in the study soon after patients' admission to hospital. Thirty-six relatives and 31 patients were re-assessed 9 months after patients' discharge. Both assessments included patients' symptomatology and relatives' EE levels, burden of care, and perception of patients' social functioning.
Twenty-three relatives (64%) had the same EE level in both assessments, nine (25%) had changed from high to low EE, and four (11%) from low to high EE. Improvement in burden and perception of patients' social role performance were significantly more accentuated among relatives who changed from high to low EE than among relatives who had a stable EE level. Variables that best predicted changes in EE levels were changes in burden scores and number of hours of contact between patients and relatives at follow-up.
Change in EE is associated with change in circumstances and burden. Findings support the idea that EE is better understood in an integrative model.
有证据表明,精神分裂症患者亲属的高情感表达(EE)与更高的照护负担水平以及对患者社会功能的更差认知有关。然而,EE水平随时间的变化是否与亲属照护负担的变化及其对患者社会功能的认知变化相关尚不清楚。
50例诊断为精神分裂症的患者及其50名亲属在患者入院后不久被纳入研究。36名亲属和31名患者在患者出院9个月后接受了重新评估。两次评估均包括患者的症状学以及亲属的EE水平、照护负担和对患者社会功能的认知。
23名亲属(64%)在两次评估中的EE水平相同,9名(25%)从高EE变为低EE,4名(11%)从低EE变为高EE。与EE水平稳定的亲属相比,从高EE变为低EE的亲属在负担减轻和对患者社会角色表现的认知改善方面更为明显。最能预测EE水平变化的变量是随访时负担得分的变化以及患者与亲属之间的接触时长。
EE的变化与情况和负担的变化相关。研究结果支持在综合模型中更好地理解EE这一观点。