Gebert N, Hümmelink R, Könning J, Staab D, Schmidt S, Szczepanski R, Runde B, Wahn U
Department of Ped. Pneumology and Immunology, Charité, Humboldt University, Berlin, Germany.
Patient Educ Couns. 1998 Nov;35(3):213-20. doi: 10.1016/s0738-3991(98)00061-5.
Asthma training programs for parents and children have been developed to increase both the self-management skills of asthmatic children and compliance with medical regimes. In order to evaluate two training programs for asthmatic children aged 7-14, 81 patients were randomly assigned to three groups. Group 1 consisted of 27 patients and their parents who participated in a five-day standardized family-oriented clinical asthma training program. They had monthly follow-up meetings with the training team for a period of six months. Group 2 (n = 29) had the same clinical training without follow-up interventions; a control group (n = 25) received regular medical treatment according to the international guidelines at the asthma clinics without a training program and served as control group. Questionnaires regarding self-management aspects, coping and anxiety were filled out by patients, parents, family doctors and the training team prior to as well as twelve months after the training. The results indicate that Training group 1 benefitted most with respect to active asthma self-management, Training group 2 to some degree while the control group showed no significant effects. The differences after one year between the three groups regarding physical parameters such as lung-function and days missed in school did not reach the level of significance. Our results indicate that the long-term efficacy of self management courses for asthmatic children is enhanced by regular follow-up training sessions.
针对家长和儿童的哮喘培训项目已经制定出来,以提高哮喘儿童的自我管理技能以及对医疗方案的依从性。为了评估针对7至14岁哮喘儿童的两个培训项目,81名患者被随机分为三组。第一组由27名患者及其家长组成,他们参加了为期五天的标准化家庭式临床哮喘培训项目。他们与培训团队每月进行一次随访会议,为期六个月。第二组(n = 29)接受了相同的临床培训,但没有后续干预;对照组(n = 25)在哮喘诊所按照国际指南接受常规治疗,没有培训项目,并作为对照组。患者、家长、家庭医生和培训团队在培训前以及培训后十二个月填写了关于自我管理方面、应对方式和焦虑的问卷。结果表明,第一培训组在积极的哮喘自我管理方面受益最大,第二培训组在一定程度上受益,而对照组没有显著效果。三组在一年后关于肺功能和缺课天数等身体参数方面的差异未达到显著水平。我们的结果表明,定期的随访培训课程可提高哮喘儿童自我管理课程的长期疗效。