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[脊髓损伤成年患者家庭照料者的生活质量:一项系统综述]

[Quality of life of family caregivers of adults with spinal cord injury: a systematic review].

作者信息

Prudente Cejane Oliveira Martins, Ribeiro Maysa Ferreira Martins, Porto Celmo Celeno

机构信息

Programa de Pós-Graduação em Ciências da Saúde, Faculdade de Medicina, Universidade Federal de Goiás. 1ª avenida s/n, Setor Universitário. 74605-020 Goiânia GO Brasil.

出版信息

Cien Saude Colet. 2017 Jan;22(1):123-134. doi: 10.1590/1413-81232017221.08072015.

Abstract

The scope of this study was to analyze the quality of life of family caregivers of adults with spinal cord injury. Two researchers conducted a systematic review independently, based on articles published between 2000 to 2014, using the key words quality of life and caregivers or family and spinal cord, in Portuguese, English and Spanish. The search was conducted in the Virtual Health Library (BVS) and the United States National Library of Medicine (PubMED) databases. Caregivers of tetraplegics have a worse quality of life than caregivers of paraplegics. Changes in the quality of life for the caregivers were not significant over time. Different results were observed when comparing caregivers of adults with spinal cord injury and healthy subjects. Factors that negatively influence the quality of life of caregivers were the presence of chronic disease; greater care time, age and number of children; and lower schooling level of caregivers. There is a need for public health policy development and preparation of more comprehensive intervention strategies that include not only the patient but also the caregiver.

摘要

本研究的范围是分析成年脊髓损伤患者家庭照顾者的生活质量。两名研究人员基于2000年至2014年间发表的文章,独立进行了一项系统综述,使用葡萄牙语、英语和西班牙语的关键词“生活质量”以及“照顾者”或“家庭”和“脊髓”。检索在虚拟健康图书馆(BVS)和美国国立医学图书馆(PubMED)数据库中进行。四肢瘫痪患者的照顾者生活质量比截瘫患者的照顾者更差。照顾者的生活质量随时间变化不显著。在比较脊髓损伤成年患者的照顾者和健康受试者时观察到了不同的结果。对照顾者生活质量产生负面影响的因素包括慢性病的存在;更长的照顾时间、年龄和子女数量;以及照顾者较低的受教育水平。需要制定公共卫生政策并准备更全面的干预策略,这些策略不仅要包括患者,还要包括照顾者。

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