Faculty of Health and Life Sciences, Oxford Brookes University, Oxford, UK.
Oxford Institute of Nursing, Midwifery and Allied Health Research, Oxford, UK.
Disabil Rehabil. 2021 Oct;43(20):2866-2874. doi: 10.1080/09638288.2020.1720318. Epub 2020 Feb 4.
To develop an in-depth understanding of how survivors of acquired brain injury (ABI) experience fatigue and how fatigue affects everyday life.
We conducted semi-structured in-depth interviews with 16 adults with ABI fatigue, recruited from support groups in south east UK. Interviews were analysed using the frameworks method.
We developed four themes: experiencing fatigue in the context of everyday activities, struggling to make sense of fatigue, coping with fatigue, and adjusting social participation in the context of fatigue. Fatigue was comprised of mental, physical, generalised, and motivational fatigue. Balancing fatigue against participation in daily activities was influenced by coping strategies and social support. Opportunities to socialize or participate in meaningful activities provided incentives for participants to push through their fatigue.
This study highlights complex interactions that potentially mitigate the impact of fatigue on everyday life. Educational and self-management approaches to fatigue need to account for different types of fatigue in the contexts of an individual's daily activity. Assessment of fatigue should capture in-the-moment experiences of different types of fatigue and activity. Social support and participation in meaningful activities may help individuals to break the negative cycle of fatigue and inactivity.Implications for rehabilitationAssessment of fatigue after brain injury should capture the multidimensional nature of fatigue as well as contextual information about exacerbating activities and environments.Development of personalised coping strategies that account for perceived triggers of different subtypes of fatigue may help ABI survivors to broaden their activity and social participation.Social support and opportunities to participate in personally meaningful activities may help prevent or break a negative cycle of fatigue and inactivity for some ABI survivors.
深入了解获得性脑损伤 (ABI) 幸存者的疲劳感，以及疲劳感如何影响日常生活。
我们对来自英国东南部支持小组的 16 名 ABI 疲劳幸存者进行了半结构化深入访谈。使用框架方法对访谈进行分析。
我们得出了四个主题：在日常活动背景下体验疲劳、努力理解疲劳、应对疲劳以及在疲劳背景下调整社会参与。疲劳包括心理疲劳、身体疲劳、全身性疲劳和动机性疲劳。平衡疲劳与日常活动参与度受到应对策略和社会支持的影响。社交或参与有意义活动的机会为参与者提供了克服疲劳的动力。
本研究强调了可能减轻疲劳对日常生活影响的复杂相互作用。针对疲劳的教育和自我管理方法需要考虑到个体日常活动背景下不同类型的疲劳。疲劳评估应捕捉不同类型疲劳和活动的即时体验。社会支持和参与有意义的活动可能有助于个人打破疲劳和不活动的负面循环。
脑损伤后的疲劳评估应捕捉疲劳的多维性质，以及关于加重活动和环境的情境信息。制定个性化的应对策略，考虑到不同亚型疲劳的感知触发因素，可能有助于 ABI 幸存者扩大他们的活动和社会参与度。社会支持和参与个人有意义活动的机会可能有助于预防或打破一些 ABI 幸存者的疲劳和不活动的负面循环。
