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一个旨在改善西非精神疾病患者护理并减少侵犯其人权行为的数字工具包(M-Healer):以用户为中心的设计、开发与可用性研究

A Digital Toolkit (M-Healer) to Improve Care and Reduce Human Rights Abuses Against People With Mental Illness in West Africa: User-Centered Design, Development, and Usability Study.

作者信息

Ben-Zeev Dror, Meller Suzanne, Snyder Jaime, Attah Dzifa A, Albright Liam, Le Hoa, Asafo Seth M, Collins Pamela Y, Ofori-Atta Angela

机构信息

BRiTE Center, Department of Psychiatry and Behavioral Sciences, University of Washington, Seattle, WA, United States.

Information School, University of Washington, Seattle, WA, United States.

出版信息

JMIR Ment Health. 2021 Jul 2;8(7):e28526. doi: 10.2196/28526.

Abstract

BACKGROUND

The resources of West African mental health care systems are severely constrained, which contributes to significant unmet mental health needs. Consequently, people with psychiatric conditions often receive care from traditional and faith healers. Healers may use practices that constitute human rights violations, such as flogging, caging, forced fasting, and chaining.

OBJECTIVE

The aim of this study is to partner with healers in Ghana to develop a smartphone toolkit designed to support the dissemination of evidence-based psychosocial interventions and the strengthening of human rights awareness in the healer community.

METHODS

We conducted on-site observations and qualitative interviews with healers, a group co-design session, content development and prototype system build-out, and usability testing.

RESULTS

A total of 18 healers completed individual interviews. Participants reported on their understanding of the causes and treatments of mental illnesses. They identified situations in which they elect to use mechanical restraints and other coercive practices. Participants described an openness to using a smartphone-based app to help introduce them to alternative practices. A total of 12 healers participated in the co-design session. Of the 12 participants, 8 (67%) reported having a smartphone. Participants reported that they preferred spiritual guidance but that it was acceptable that M-Healer would provide mostly nonspiritual content. They provided suggestions for who should be depicted as the toolkit protagonist and ranked their preferred content delivery modality in the following order: live-action video, animated video, comic strip, and still images with text. Participants viewed mood board prototypes and rated their preferred visual design in the following order: religious theme, nature motif, community or medical, and Ghanaian culture. The content was organized into modules, including an introduction to the system, brief mental health interventions, verbal de-escalation strategies, guided relaxation techniques, and human rights training. Each module contained several scripted digital animation videos, with audio narration in English or Twi. The module menu was represented by touchscreen icons and a single word or phrase to maximize accessibility to users with limited literacy. In total, 12 participants completed the M-Healer usability testing. Participants commented that they liked the look and functionality of the app and understood the content. The participants reported that the information and displays were clear. They successfully navigated the app but identified several areas where usability could be enhanced. Posttesting usability measures indicated that participants found M-Healer to be feasible, acceptable, and usable.

CONCLUSIONS

This study is the first to develop a digital mental health toolkit for healers in West Africa. Engaging healers in user-centered development produced an accessible and acceptable resource. Future field testing will determine whether M-Healer can improve healer practices and reduce human rights abuses.

摘要

背景

西非精神卫生保健系统的资源严重受限,这导致大量未得到满足的精神卫生需求。因此,患有精神疾病的人常常接受传统治疗师和信仰治疗师的治疗。治疗师可能会采用一些构成侵犯人权行为的做法,如鞭打、囚禁、强制禁食和锁链束缚。

目的

本研究的目的是与加纳的治疗师合作,开发一个智能手机工具包,旨在支持循证心理社会干预措施的传播,并增强治疗师群体的人权意识。

方法

我们对治疗师进行了现场观察和定性访谈、一次小组协同设计会议、内容开发和原型系统构建,以及可用性测试。

结果

共有18名治疗师完成了个人访谈。参与者报告了他们对精神疾病病因和治疗方法的理解。他们指出了选择使用机械约束和其他强制手段的情况。参与者表示愿意使用基于智能手机的应用程序,以帮助他们了解其他治疗方法。共有12名治疗师参加了协同设计会议。在这12名参与者中,8人(67%)报告拥有智能手机。参与者表示他们更喜欢精神指导,但认为M - 治疗师提供的大多是非精神内容是可以接受的。他们就工具包主角的人选提出了建议,并按以下顺序对他们喜欢的内容呈现方式进行了排序:实景视频、动画视频、连环漫画和带文字的静态图片。参与者查看了情绪板原型,并按以下顺序对他们喜欢的视觉设计进行了评分:宗教主题、自然图案、社区或医疗主题以及加纳文化。内容被组织成多个模块,包括系统介绍、简短的心理卫生干预措施、言语缓和策略、引导式放松技巧和人权培训。每个模块包含几个配有英文或特维语音频旁白的脚本数字动画视频。模块菜单由触摸屏图标和单个单词或短语表示,以最大限度地方便识字有限的用户使用。共有12名参与者完成了M - 治疗师的可用性测试。参与者评论说他们喜欢该应用程序的外观和功能,并且理解其中的内容。参与者报告说信息和显示清晰。他们成功地操作了该应用程序,但指出了几个可以提高可用性的方面。测试后的可用性指标表明,参与者认为M - 治疗师可行、可接受且易用。

结论

本研究首次为西非的治疗师开发了一个数字精神卫生工具包。让治疗师参与以用户为中心的开发产生了一个易于使用且可接受的资源。未来的实地测试将确定M - 治疗师是否能改善治疗师的做法并减少人权侵犯行为。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4410/8285751/467f06db3ccf/mental_v8i6e28526_fig1.jpg

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