Haak Maria, Ivanoff Synneve, Barenfeld Emmelie, Berge Isak, Lood Qarin
Research Platform for Collaboration for Health, Faculty of Health Science, Kristianstad University, Kristianstad, Sweden.
Department of Health and Rehabilitation, Institute of Neuroscience and Physiology, Sahlgrenska Academy, Centre for Ageing and Health - AgeCap, University of Gothenburg, Gothenburg, Sweden.
Res Involv Engagem. 2021 Dec 24;7(1):91. doi: 10.1186/s40900-021-00333-7.
There is an increased interest to make the voices of frail older people heard in research by actively involving them in research processes. Involving frail older people in research could, however, be perceived as challenging by researchers. To actively involve frail older people in research processes in a meaningful way, the knowledge about their own views on what research is must be widened and deepened.
Individual interviews were conducted with 17 frail older men and women with former experience of participation in research studies. Qualitative data were analysed using content analysis.
Frail older people's views on what research means are described through the main category; An essentiality beyond one's own competence, which describes research as a complex process that is important for society but difficult to understand. This is described in the sub-categories; A driving force for societal development, A benefit when based on lived experience, A source of knowledge difficult to access and understand, and A respected job filled with responsibilities.
Different views on research from the perspective of frail older people show that research is viewed as a complex yet important phenomenon to frail older people. Research was also seen as a natural part in society. Research was viewed as difficult to access and understand. Thus, researchers must train themselves to communicate research findings to the public in an understandable way. To create common understandings through information and education, researchers might be better placed to involve frail older people in a meaningful way and thereby also have the possibility to develop good working practice and relationships with those involved.
人们越来越希望通过让体弱的老年人积极参与研究过程，使他们的声音在研究中得到倾听。然而，研究人员可能会认为让体弱的老年人参与研究具有挑战性。为了以有意义的方式让体弱的老年人积极参与研究过程，必须拓宽和深化对他们自身对研究本质看法的了解。
对17名曾参与过研究的体弱老年男性和女性进行了个人访谈。使用内容分析法对定性数据进行了分析。
体弱老年人对研究意义的看法通过主要类别“超越自身能力的重要性”来描述，该类别将研究描述为一个对社会很重要但难以理解的复杂过程。这在子类别中进一步阐述：社会发展的驱动力、基于生活经验的益处、难以获取和理解的知识来源以及一份充满责任的受尊重工作。
从体弱老年人的角度来看，对研究的不同看法表明，研究对体弱老年人来说是一个复杂但重要的现象。研究也被视为社会的自然组成部分。研究被认为难以获取和理解。因此，研究人员必须训练自己以易懂的方式向公众传达研究结果。通过信息和教育创造共同理解，研究人员可能更有能力以有意义的方式让体弱老年人参与进来，从而也有可能与相关人员发展良好的工作实践和关系。
