与患有家族性地中海热的孩子一起生活：这会影响父母的生活质量吗？
Living with a child with familial Mediterranean fever: does it affect the quality of life of the parents?
作者信息
Press J, Neumann L, Abu-Shakra M, Bolotin A, Buskila D
机构信息
Department of Pediatrics, Soroka Medical Center, Ben-Gurion University of the Negev, Beer-Sheva, Israel.
出版信息
Clin Exp Rheumatol. 2000 Jan-Feb;18(1):103-6.
OBJECTIVE
The aim of the present study was to assess the quality of life (QOL) and the psychological status of parents of children with familial Mediterranean fever (FMF).
METHODS
The QOL, anxiety and depression of the parents of 35 children with FMF were evaluated and compared to the parents of 23 healthy children.
RESULTS
Mothers of FMF children had lower QOL scores than mothers of healthy children: 5.5 +/- 1.1 versus 6.0 +/- 0.6 (p = 0.048). They also expressed higher levels of anxiety and depression. Within each group, mothers were more anxious and depressed than fathers. Parents with several FMF children were not significantly different from parents with only one FMF child.
CONCLUSION
The QOL and psychological well being of parents with FMF children were found to be slightly impaired, especially that of the mothers.
目的
本研究旨在评估家族性地中海热（FMF）患儿父母的生活质量（QOL）和心理状态。
方法
对35名FMF患儿的父母的生活质量、焦虑和抑郁情况进行评估，并与23名健康儿童的父母进行比较。
结果
FMF患儿的母亲生活质量得分低于健康儿童的母亲：分别为5.5±1.1和6.0±0.6（p = 0.048）。她们还表现出更高水平的焦虑和抑郁。在每组中，母亲比父亲更焦虑和抑郁。有多个FMF患儿的父母与只有一个FMF患儿的父母没有显著差异。
结论
发现FMF患儿父母的生活质量和心理健康略有受损，尤其是母亲。
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