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[保险与就业中的基因歧视]

[Genetic discrimination in insurance and employment].

作者信息

Tetushkin E Ia

机构信息

Vavilov Institute of General Genetics, Russian Academy of Sciences, Moscow, Russia.

出版信息

Genetika. 2000 Jul;36(7):887-99.

Abstract

The results of the Human Genome project will eventually have a great impact on medicine. However, the expansion of genetic testing due to these results exacerbates ethical, legal, and economic problems related to the project even today. Virtually free access to the data of testing would present an encroachment on personal freedom, since it may lead to discrimination based on genetic characteristics, i.e., genetic discrimination. Examples of this discrimination are already known; they include unsubstantiated refusals to employ carriers of certain alleles and denials of life or health insurance coverage and the ability to adopt a child. The use of genetic information in the insurance and employment fields is of primary concern due to its economic importance. Consumers consider genetic discrimination in these areas to be intolerable moral and social injustice. Genetic discrimination may eventually lead to the formation of a class of people who cannot buy an insurance policy, and, in the employment field, rejection of persons with "undesirable" genes infringes on citizens' rights to equal opportunity. However, selection for genetic characteristics in employment is justified if these characteristics determine sensitivity to occupational hazards.

摘要

人类基因组计划的成果最终将对医学产生重大影响。然而,即便在当下,因这些成果导致的基因检测范围扩大也加剧了与该计划相关的伦理、法律和经济问题。实际上,免费获取检测数据会侵犯个人自由,因为这可能导致基于基因特征的歧视,即基因歧视。这种歧视的例子已经为人所知;包括毫无根据的拒绝雇佣某些等位基因携带者、拒绝提供人寿或健康保险以及拒绝给予收养孩子的资格。由于其经济重要性,保险和就业领域对基因信息的使用备受关注。消费者认为这些领域的基因歧视是不可容忍的道德和社会不公。基因歧视最终可能导致形成一类无法购买保险的人群,而且在就业领域,拒绝具有“不良”基因的人侵犯了公民平等机会的权利。然而,如果这些特征决定了对职业危害的敏感性,那么在就业中基于基因特征进行筛选就是合理的。

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