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前列腺癌男性患者的支持性护理需求(2000年)

The supportive care needs of men with prostate cancer (2000).

作者信息

Steginga S K, Occhipinti S, Dunn J, Gardiner R A, Heathcote P, Yaxley J

机构信息

School of Applied Psychology, Griffith University, Australia.

出版信息

Psychooncology. 2001 Jan-Feb;10(1):66-75. doi: 10.1002/1099-1611(200101/02)10:1<66::aid-pon493>3.0.co;2-z.

Abstract

The diagnosis and subsequent treatment of prostate cancer is followed by a range of significant disease specific and iatrogenic sequelae. However, the supportive care needs of men with prostate cancer are not well described in the literature. The present study assesses the supportive care needs of men with prostate cancer who are members of prostate cancer self-help groups in Queensland, Australia. In all, 206 men aged between 48 and 85 years (mean=68) completed the Supportive Care Needs Survey (SCNS) (62% response). The SCNS is a validated measure assessing perceived need in the domains of psychological needs, health system and information needs, physical and daily living needs, patient care and support, and sexuality. Items assessing need for access to services and resources were also included. One third of the sample reported a moderate to high need for help for multiple items in the sexuality, psychological and health system and information domains. Younger men reported greater need in the sexuality domain; living in major urban centres was predictive of greater psychological need; being closer to the time of diagnosis was related to greater need for help in the physical and daily living domain; having prostate cancer that is not in remission, having received radiation therapy, and lower levels of education were predictive of greater need for help in patient care and support. Of the total sample, 55% of men had used alternative cancer treatments in the past 12 months, with younger and more educated men more likely to use alternative therapies. Interventions in sexuality, psychological concerns and informational support are priorities for men with prostate cancer.

摘要

前列腺癌的诊断及后续治疗会引发一系列与疾病本身及医源性相关的严重后遗症。然而,前列腺癌患者的支持性护理需求在文献中并未得到充分描述。本研究评估了澳大利亚昆士兰州前列腺癌自助组织成员中前列腺癌患者的支持性护理需求。共有206名年龄在48至85岁之间(平均年龄68岁)的男性完成了支持性护理需求调查(SCNS)(回复率为62%)。SCNS是一种经过验证的测量工具,用于评估心理需求、医疗系统和信息需求、身体和日常生活需求、患者护理与支持以及性方面的感知需求。还包括了评估获取服务和资源需求的项目。三分之一的样本报告称在性、心理、医疗系统和信息领域的多个项目上有中度至高需求。年轻男性在性领域的需求更大;居住在主要城市中心预示着心理需求更大;距离诊断时间越近与身体和日常生活领域的帮助需求越大相关;患有未缓解的前列腺癌、接受过放射治疗以及教育水平较低预示着在患者护理与支持方面的帮助需求更大。在整个样本中,55%的男性在过去12个月中使用过替代癌症治疗方法,年轻且受教育程度较高的男性更有可能使用替代疗法。对前列腺癌患者来说,在性、心理问题和信息支持方面的干预是优先事项。

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