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报告和转介研究参与者:研究儿童和青少年的调查人员面临的伦理挑战。

Reporting and referring research participants: ethical challenges for investigators studying children and youth.

作者信息

Fisher Celia B

出版信息

Ethics Behav. 1994;4(2):87-95. doi: 10.1207/s15327019eb0402_2.

Abstract

Researchers studying at-risk and socially disenfranchised child and adolescent populations are facing ethical dilemmas not previously encountered in the laboratory or the clinic. One such set of ethical challenges involves whether to: (a) share with guardians research-derived information regarding participant risk, (b) provide participants with service referrals, or (c) report to local authorities problems uncovered during the course of investigation. The articles assembled for this special section address the complex issues of deciding if, when, and how to report or provide referrals for research participants who are minors (referred to hereafter as minor research participants). This paper focuses on two factors underlying these decisions: the validity of risk estimates and meta-ethical positions on scientific responsiblity. It is suggested that, before sharing information about minor research participants investigators should do the following: critically examine the diagnostic validity of developmental measures, include the scope and limitations of information sharing in informed consent procedures, and become familiar with state reporting laws. I discuss the impact of the traditionally accepted act utilitarian meta-ethical position on the investigator-participant relationship, and I recommend consideration of alternative positions as a step toward developing a research ethic of scientific responsibility and care.

摘要

研究处于危险和社会边缘化状态的儿童及青少年群体的研究人员正面临着实验室或诊所中未曾遇到过的伦理困境。其中一组这样的伦理挑战涉及是否要:(a) 与监护人分享研究得出的有关参与者风险的信息,(b) 为参与者提供服务转介,或 (c) 向地方当局报告调查过程中发现的问题。为这个特刊汇集的文章探讨了有关决定是否、何时以及如何为未成年研究参与者(以下简称未成年研究对象)报告情况或提供转介服务的复杂问题。本文着重探讨这些决定背后的两个因素:风险评估的有效性以及关于科学责任的元伦理立场。有人建议,在分享有关未成年研究对象的信息之前,研究人员应做到以下几点:严格审查发育测量的诊断有效性,在知情同意程序中纳入信息共享的范围和局限性,并熟悉各州的报告法律。我讨论了传统上被接受的行为功利主义元伦理立场对研究者与参与者关系的影响,并建议考虑其他立场,以此作为朝着制定一种具有科学责任和关怀的研究伦理迈出的一步。

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