Perry JoAnn
University of British Columbia School of Nursing, 2211 Wesbrook Mall, Vancouver, Canada V6T 2B5.
Res Nurs Health. 2002 Aug;25(4):307-16. doi: 10.1002/nur.10040.
Wives giving care to spouses with dementia are a particularly vulnerable segment of the caregiving population. In this article a grounded theory study of 20 such wives is described, with their experiences explained as a process of interpretive caring. Wives began the process by either seeing changes in their husbands or recognizing changes in their work. Following this, the wives moved on to a phase of drawing inferences about what they observed and then took over their husbands' roles and responsibilities. These changes prompted the wives to rewrite identities for their husbands that incorporated the dementia and to rewrite identities for themselves to reflect their new roles, abilities, and strengths. Finally, the wives set about constructing a new daily life to sustain both partners. This process is neutral and allows for positive aspects of caring to be considered along with grief and frustration.
照顾患有痴呆症配偶的妻子是 caregiver群体中特别脆弱的一部分。本文描述了一项对20名此类妻子的扎根理论研究,她们的经历被解释为一个诠释性关怀的过程。妻子们通过观察丈夫的变化或意识到自己工作中的变化开始这个过程。在此之后,妻子们进入了一个对所观察到的情况进行推断的阶段,然后接管了丈夫的角色和责任。这些变化促使妻子们为患有痴呆症的丈夫重新塑造身份,并为自己重新塑造身份,以反映她们的新角色、能力和优势。最后,妻子们着手构建一种新的日常生活,以维持双方的生活。这个过程是中立的,允许在考虑悲伤和挫折的同时,也考虑到关怀的积极方面。