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拥抱不确定性:对儿童癌症幸存者经历的探索

Embracing uncertainty: an exploration of the experiences of childhood cancer survivors.

作者信息

Parry Carla

机构信息

University of Colorado Health Sciences Center, Division of Health Care Policy and Research, USA.

出版信息

Qual Health Res. 2003 Feb;13(2):227-46. doi: 10.1177/1049732302239600.

Abstract

Uncertainty is a central theme in the cancer survivorship and coping literature. Existing research on cancer-related uncertainty has primarily documented the adverse effects of existential uncertainty on survivors' well-being and located uncertainty within the stress and coping paradigm. Using in-depth qualitative interviews, the authors explores the paradoxical meanings and impact of uncertainty in the lives of long-term survivors of childhood cancer. The findings suggest that although uncertainty can be a source of distress, it can also be a catalyst for growth, a deepened appreciation for life, greater awareness of life purpose, development of confidence and resilience, and optimism. The results suggest that uncertainty is a dialectic phenomenon located within larger contexts of both stress and coping, and psychospiritual growth.

摘要

不确定性是癌症幸存者及应对相关文献的核心主题。现有关于癌症相关不确定性的研究主要记录了生存不确定性对幸存者幸福感的不利影响,并将不确定性置于压力与应对范式之中。作者通过深入的定性访谈,探讨了儿童癌症长期幸存者生活中不确定性的矛盾意义和影响。研究结果表明,尽管不确定性可能是痛苦的来源,但它也可以成为成长的催化剂、对生活更深刻的感激、对生活目标更清晰的认识、信心和复原力的发展以及乐观情绪。结果表明,不确定性是一种辩证现象,存在于压力与应对以及心理精神成长的更大背景之中。

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