Kikule Ekiria
Hospice Africa (Uganda), PO Box 7757, Kampala, Uganda.
BMJ. 2003 Jul 26;327(7408):192-4. doi: 10.1136/bmj.327.7408.192.
To identify the palliative care needs of terminally ill people in Uganda.
Descriptive cross sectional study.
Home care programmes in and around Kampala that look after terminally ill people in their homes.
173 terminally ill patients registered with the home care programmes.
Most of the participants had either HIV/AIDS or cancer or both; 145 were aged under 50 years, and 107 were women. Three main needs were identified: the control or relief of pain and other symptoms; counselling; and financial assistance for basic needs such as food, shelter, and school fees for their children. The preferred site of care was the home, though all these people lived in urban areas with access to healthcare services within 5 km of their homes.
A "good death" in a developing country occurs when the dying person is being cared for at home, is free from pain or other distressing symptoms, feels no stigma, is at peace, and has their basic needs met without feeling dependent on others.
确定乌干达晚期患者的姑息治疗需求。
描述性横断面研究。
坎帕拉及其周边地区的居家护理项目,这些项目负责在家中照顾晚期患者。
在居家护理项目中登记的173名晚期患者。
大多数参与者患有艾滋病毒/艾滋病或癌症,或两者皆有;145人年龄在50岁以下,107人为女性。确定了三项主要需求:控制或缓解疼痛及其他症状;咨询;以及为满足诸如食物、住所和子女学费等基本需求提供经济援助。尽管所有这些人都生活在城市地区,且住所方圆5公里内可获得医疗服务,但他们首选的护理地点仍是家中。
在发展中国家,当临终者在家中得到照料,没有疼痛或其他痛苦症状,没有耻辱感,内心平静,基本需求得到满足且不感到依赖他人时,才会有“善终”。