Lowrance William W
Judge Institute of Management, University of Cambridge, UK.
J Biolaw Bus. 2003;6(4):30-60.
In this fast-moving age of data banking, data are a currency, and often a commodity. Electronic health records are being developed everywhere. Increasingly, data collected for various primary purposes are being re-used for research. With personal mobility, contracting of services, and telemedicine, health care data are crossing national borders, and therefore so are genetic information, biological materials, and reimbursement data. There is much public and legal concern about the implications. This article addresses the question: Under what conditions may data not collected specifically for research, such as primary medical data, be re-used for health research without compromising the privacy of the data-subjects?
在这个数据存储快速发展的时代，数据是一种货币，而且往往是一种商品。电子健康记录正在各地得到开发。越来越多为各种主要目的收集的数据正被重新用于研究。随着个人流动性、服务承包和远程医疗的发展，医疗保健数据正跨越国界，因此基因信息、生物材料和报销数据也是如此。公众和法律对其影响非常关注。本文探讨的问题是：在不损害数据主体隐私的情况下，诸如基本医疗数据等并非专门为研究而收集的数据，在何种条件下可以被重新用于健康研究？
