Gannotti Mary E, Kaplan Lawrence C, Handwerker W Penn, Groce Nora Ellen
Global Health Division, Department of Epidemiology and Public Health, Yale University School of Medicine, New Haven, Connecticut, USA.
J Dev Behav Pediatr. 2004 Jun;25(3):156-65. doi: 10.1097/00004703-200406000-00003.
This study compares service use, perceived unmet needs, and expectations of providers of Latino and Euro-American families of children with disabilities enrolled in a Title V Program. Eighty-four families and 20 providers participated in open-ended, semistructured, and structured interviews. Latino families underused Title V services (p <.001). The Latino families were more likely to cite unmet needs in the following areas: an unresolved health problem (p <.05), rehabilitation therapy programs (p <.001), or need for more information or a support group (p <.001). The Euro-American families cited unmet needs in the following areas: lack of day care (p <.001), respite services (p <.001), recreational programs (p <.001), and home health aides (p <.007). Textual analysis of open interviews revealed that the two groups of families had different expectations of providers. Latino cultural values play a role in these differences, creating barriers for effectively communicating with providers and for meeting children's needs.