Kaur Harvinder, Gandhi Anjali
Social Scientist, C-173 Jal Vayu Vihar, Sector 21, NOIDA 201 301, Uttar Pradesh.
Indian J Lepr. 2003 Jan-Mar;75(1):37-46.
Leprosy is considered to cause more social than medical problems. The present study focussed on this aspect in order to investigate the level of awareness among people--about their attitude towards the disease and the afflicted. The results are based on interviews with 104 persons in Delhi. The sample data revealed that the level of knowledge of leprosy was inadequate. The cause of the disease was known to 44.2% of those interviewed, while 31.7% were completely ignorant; 6.7% believed it to be the consequence of an individual's past misdeeds, and 1.9% believed it to have been caused by divine curse. 63.1% were aware that the disease is curable. 73.1% of the persons interviewed sympathised with leprosy-afflicted beggars. 61.5% favoured leprosy patients to stay with their families and within their communities. 67.3% felt that the cured could marry, while 25% felt that the leprosy-afflicted should stay in leprosy colonies away from the society. 54.8% were reluctant to employ the leprosy-afflicted as domestic help, and 31.7% were reluctant to establish matrimonial relationship with a family having a leprosy-afflicted person. The data call for intensification ofpublic awareness regarding the aetiology of leprosy. Positive and scientific information should be disseminated to minimize the social prejudices associated with the disease.
麻风病被认为造成的社会问题多于医学问题。本研究聚焦于这一方面,以调查人们对该疾病的认知水平——关于他们对这种疾病及其患者的态度。研究结果基于对德里104人的访谈。样本数据显示,人们对麻风病的了解程度不足。44.2%的受访者知道该疾病的病因,而31.7%的人对此完全无知;6.7%的人认为这是个人过去恶行的后果,1.9%的人认为是神的诅咒所致。63.1%的人知道这种疾病是可治愈的。73.1%的受访者同情患麻风病的乞丐。61.5%的人赞成麻风病患者与家人及社区成员待在一起。67.3%的人认为治愈者可以结婚,而25%的人认为麻风病患者应该住在麻风病隔离区,远离社会。54.8%的人不愿意雇佣患麻风病的人做家政服务,31.7%的人不愿意与有麻风病患者的家庭建立婚姻关系。这些数据表明需要加强公众对麻风病病因的认识。应传播积极科学的信息,以尽量减少与该疾病相关的社会偏见。