Yousafzai Aisha K, Dlamini Phindile J, Groce Nora, Wirz Sheila
Centre for International Child Health, Institute of Child Health, University College London, London WC1N 1EH, UK.
Int J Rehabil Res. 2004 Sep;27(3):247-51. doi: 10.1097/00004356-200409000-00012.
Although there has been research focused on the disabling consequences of HIV/AIDS, there has been very little documented information about HIV/AIDS for individuals with disability prior to infection. There is evidence to suggest that people with disabilities face inequalities in accessing health information and services. The aim of this study was to explore whether disabled and non-disabled young adults in Swaziland perceive HIV/AIDS similarly. A qualitative study using focus-group discussions was conducted. Four focus groups were conducted with a total of 56 non-disabled adults (aged 16-29 years) and four focus groups were conducted with a total of 32 adults with either a physical or hearing disability (aged 18-32 years). The focus-group schedule explored knowledge about HIV/AIDS, personal risk and experiences of health-seeking practices. Information and awareness about HIV/AIDS was good in both rural and urban areas among the non-disabled participants, who obtained their information from a wide range of sources. In contrast, participants with disability, who obtained information about HIV/AIDS from a limited range of sources, lacked knowledge about HIV/AIDS and were misinformed about modes of transmission. Women with disabilities described experiences of sexual exploitation and abuse, which was perceived to be higher among disabled women than their non-disabled peers; they felt this was because disabled women were perceived to be 'free' from the HIV virus by non-disabled men. Further research is necessary to enable HIV/AIDS programmes to address the specific needs of people with disabilities.
尽管已有研究聚焦于艾滋病毒/艾滋病造成的致残后果,但关于感染艾滋病毒/艾滋病之前残疾人士感染情况的文献资料却非常少。有证据表明,残疾人在获取健康信息和服务方面面临不平等。本研究的目的是探讨斯威士兰残疾和非残疾青年成年人对艾滋病毒/艾滋病的认知是否相似。开展了一项采用焦点小组讨论的定性研究。对总共56名非残疾成年人(年龄在16 - 29岁之间)进行了4个焦点小组讨论,对总共32名身体或听力有残疾的成年人(年龄在18 - 32岁之间)进行了4个焦点小组讨论。焦点小组讨论日程探讨了关于艾滋病毒/艾滋病的知识、个人风险以及寻求医疗服务的经历。在非残疾参与者中,农村和城市地区对艾滋病毒/艾滋病的信息和认识都较好,他们从广泛的来源获取信息。相比之下,残疾参与者从有限的来源获取艾滋病毒/艾滋病信息,缺乏关于艾滋病毒/艾滋病的知识,并且在传播方式上得到错误信息。残疾女性描述了性剥削和性虐待的经历,她们认为残疾女性遭受的此类情况比非残疾同龄人更多;她们觉得这是因为非残疾男性认为残疾女性不会感染艾滋病毒。有必要进行进一步研究,以使艾滋病毒/艾滋病项目能够满足残疾人的特殊需求。