This paper outlines the history of the World Federation of Hemophilia (WFH) and its work. The WFH produces a number of publications each year, and conducts regular surveys and data collection. Two of its most important roles are in the provisions of programmes to developing countries, and in promoting the views of the haemophilia community on issues that impact on the lives of people with haemophilia. Further initiatives are planned in the future to increase the length and quality of life for those living with haemophilia.