Sample Pat L, Johns Nikole, Gabella Barbara, Langlois Jean
Department of Occupational Therapy, Colorado State University, Fort Collins, CO 80523-1573, USA.
Brain Inj. 2004 Dec;18(12):1177-89. doi: 10.1080/02699050410001719925.
This study was conducted to determine the feasibility of using Colorado Traumatic Brain Injury (TBI) Surveillance System data to link individuals to information and services in their communities.
Using a qualitative exploratory approach, the investigators conducted focus groups of individuals with TBI and family members (n = 29) and individual interviews with state agency, medical and community services representatives (n = 15).
The results showed that the participants saw many current problems with linking persons to services and with accessing care. The participants supported using TBI surveillance data to link persons to information and services, offered suggestions, discussed confidentiality and consent issues, described possible cultural competence issues and addressed cost feasibility.
Overall persons with TBI and their family members overwhelmingly supported using the Colorado TBI Surveillance System to link persons to services. One major concern, however, was how to link persons who were not included in the surveillance data because their TBI happened before the surveillance system was implemented or because their injury did not result in hospitalization. This concern is addressed in a Linkage Model.
开展本研究以确定利用科罗拉多创伤性脑损伤（TBI）监测系统数据将个体与社区中的信息及服务相联系的可行性。
采用定性探索性方法，研究人员对患有创伤性脑损伤的个体及其家庭成员进行了焦点小组访谈（n = 29），并对州机构、医疗和社区服务代表进行了个人访谈（n = 15）。
结果显示，参与者发现目前在将个体与服务相联系以及获得护理方面存在诸多问题。参与者支持利用创伤性脑损伤监测数据将个体与信息及服务相联系，提出了建议，讨论了保密和同意问题，描述了可能存在的文化能力问题，并探讨了成本可行性。
总体而言，创伤性脑损伤患者及其家庭成员绝大多数支持利用科罗拉多创伤性脑损伤监测系统将个体与服务相联系。然而，一个主要问题是如何联系那些未被纳入监测数据的个体，原因是他们的创伤性脑损伤发生在监测系统实施之前，或者他们的损伤未导致住院治疗。一个联系模型解决了这一问题。
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