Peck Blake, Lillibridge Jennifer
School of Nursing, University of Ballarat, Victoria 3350, Australia.
J Child Health Care. 2005 Mar;9(1):31-45. doi: 10.1177/1367493505049645.
This article reports findings from a larger qualitative study conducted to gain insight into the experience of fathers living with their chronically-ill children in rural Victoria, Australia. Data were collected via unstructured interviews with four fathers. The findings presented in this article explore the phenomena of normalization for fathers within the chronic illness experience. Fathers described normalizing the experience of living with their chronically-ill child as involving a combination of various coping strategies and behaviours including: (1) accepting the child's condition, (2) changing expectations, (3) focusing energies on a day-to-day basis, (4) minimizing knowledge-seeking behaviours, and (5) engaging in external distraction activities. Findings highlight the complex and unique normalization strategies these men utilized and contribute to knowledge and understanding of the complex nature of raising a chronically-ill child in rural Australia and provide a sound basis upon which to guide an ongoing and holistic assessment of fathers with chronically-ill children.
本文报告了一项规模更大的定性研究的结果,该研究旨在深入了解澳大利亚维多利亚州农村地区与慢性病子女共同生活的父亲们的经历。通过对四位父亲进行非结构化访谈收集了数据。本文呈现的研究结果探讨了慢性病经历中父亲们的常态化现象。父亲们将与慢性病子女共同生活的经历常态化描述为涉及多种应对策略和行为的组合,包括:(1)接受孩子的病情,(2)改变期望,(3)关注日常事务,(4)尽量减少求知行为,以及(5)参与外部消遣活动。研究结果突出了这些男性所采用的复杂且独特的常态化策略,有助于了解在澳大利亚农村抚养慢性病子女的复杂性,并为对患有慢性病子女的父亲进行持续全面评估提供了坚实的基础。